Good news for you with tumor reduction, unfortunately the chemo was too damaging for my husband to continue so we are just on pain management. He can have more radiology for pain as long as his condition is good enough. At the moment he is having periods of extreme fatigue & nausea. The distance can be a great inconvenience our nearest chemo is 2 hours & radiology 4 hours also palliative care is 2 hours away & district nurses 1/2 hour still we have a lot of back up by phone. It seems if things go pear shaped it is either the weekend or public holidays & I just have to cope. I find the responsibility a bit tough at times also the confinement gives me cabin fever sometimes. We have led a very active life up until this point & worked into our 70s so this is very limiting for both of us. ... View more

My husband has had 3 courses of chemo (none completed) & 2 of radiation & can have no more treatment other than pain killers. He has lost 34kls since the start of the chemo. He can't tolerate sustagen or other food replacements but I have found malted milk powder great for him, mixed 2 litres of milk with 8 heaped dessertspoons of powder & served really cold. We have weekly visits from the district nurses & a weekly phone call from palliative care who are based 200kls away. Isolation is our main problem as I have had to learn how to inject nausea & pain medication when they are necessary. The reassurance from medical staff that I am doing the correct things has been very reassuring & I have many phone contacts for assistance. We had treatment in Adelaide which is 4 hours away so each time meant staying there for the duration. ... View more