September 2015
Just had one of the calls I been dreading. My mum is going to (albeit it wonderful) hospice. They are concerned with her continued sickness, lack of eating, fatigue, speech... you name it really. This ride is terrible I want to get off. I have no words actually, just lots and lots of tears today x
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September 2015
I hear you Jackie x
Feel free to post whenever, whatever... I do!
Jule x
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September 2015
Hi Jackie
Thanks for writing and sharing. I truly believe this page helped me so much by just getting it all out there and writing it down for complete strangers to read who knew exactly what I was going thru! I hope it helped a little. There is nothing any of us can say except I understand all that you have wrote. You will decide what is best for you to do.. When to see your mum. When to cry and shout and scream. When to be involved with other tasks so that you don't think about your mum. Then feel bad that you didn't think about your mum. That's what this page is, in my opinion, for the people without cancer but who are still suffering.
You mention pain meds for your mum, no other treatments?
It's great that you chat so much, I message my mum every day and we talk Thursday's via FaceTime or Skype. Don't beat yourself up by trying to be upbeat. I am the joker of the family. I can always make mum laugh and tried to spend our phone calls whilst chatting about cancer, treatment, wigs etc to be fun and silly and positive. I realized it was a problem when I came off the phone and sobbed for an hour straight. We are all human. That was the day I wrote here.
When are the special dates in your family? 60th wedding anniversary wow! I can't wait till we go back to see mum although how bittersweet that visit will be I'm sure...
Please write again even if just to keep us posted and always happy to just read/listen. I know sometimes I don't need any answers just someone to say they understand.
Sending much love and blessings to you all xx
Jule x
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August 2015
Hi Gabe
So glad you feeling little better. It sure is a roller coaster for all involved. What great news re tumors, how many more chemo cycles will she have? My mum suffered side effects too and ended up in a wheelchair, but she is slowly learning to walk with a stick and has loved attending the hospice (not a final death hospital) which is full of positive people and energy and they help with her speech and breathing too.
How strange our roles and situation is very similar! I felt better after visiting mum in March and too thought I was handling things ok but lost the plot completely really. I do have wonderful friends and a cool boss in my school too (!) but I think unless you have personally dealt with cancer in your immediate family it is hard to understand and even then, it's my mum, my greatest love. As I said writing here and visiting my doctor, no pills, but just to chat has been great help and like you we have so many positive days but I do need to remember the facts. Your wonderful birthday/family holiday sounds amazing and is the goal to focus on I feel, as my sisters wedding is for us.
Well I won't go on and on but anytime you need to vent - not even for a reply - here is the spot.
We all got through today, and our mums know we love them, I am thankful for that
Take care
Jule
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August 2015
Hi
I posted on here a while ago as my mum has soft cell lung cancer. The weight of the world was on me as I live here and she is in UK, hence my post. You feel so alone and I appreciated those small exchanges from others which just say, we understand, we really do, we each have our own stories. Agree with other Julie. Take each day as it will and does change daily. I found that just by writing on this discussion it helped me a lot, even when no one read them. To honestly say how I am feeling, how destroying it is, how angry I am, sad, lonely. If it is possible to be with your mum when she has a meeting with her consultant try and arrange it so you can go and talk direct to try and get answers, although be prepared that sometimes there is none and it really is a waiting game.
Keep us updated on things and wish you and your family all the best x
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August 2015
Hi Gabe
Please feel free to write how you feel or PM me its ok.
I found by just writing on here it somehow felt better, real, being honest how I feeling not just how my mum is/feels.
Sending much positive thoughts to you and your family xx
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August 2015
Hi Gabe
I understand exactly Hun. Almost every word.
Have your seen your mum since the diagnosis at all?
What support do you have, partner, cool boss, close friends?
Who have you really spoken to, doctor, your sister, anyone?
Unfortunately I need to go to work but will write back later.
Hang in there Hun
Jule x
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July 2015
Thanks Emily and Julie x comments appreciated x wait and see game at the minute x will post updates when I can as like I said this makes me feel better x
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July 2015
Well although a fair few have read this post I gather no expats are dealing with this, I am thankful for that, but still wanted to update it as writing it down makes me feel better. My mum has just completed ten more sessions of radiotherapy to the brain and after a consultation with her Dr he does not want to see her for eight weeks for a scan followed by six week wait and then another scan, I gather to check how tumor in her lung is, it has shrunk, which is wonderful news! She is holding her own still but she has been warned that the next month will be tough. She did manage to go with my sister to see her wedding dress today, my sister getting married in January so very happy and hopeful at the minute that she will get to see it again at the actual wedding. I will continue to write here with updates as I stated mainly cause it helps me. x
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June 2015
My apologies firstly if this is not the correct way to introduce yourself etc but I am struggling and just wanted to write it down. My darling mum was diagnosed with terminal small cell lung cancer, which is inoperable, in January 2015 with suspected brain tumor. I live here she is back in UK with a partner and my sister lives about two hours from her. Aside from being upset I felt so very far away. Treatment started in March, five cycles of chemo, three of radiotherapy. From the outset it was tough on her, she is a fit 72 year old but after the first circle it basically destroyed her. I flew home to be with her for the second cycle, which in turn destroyed me. Mum deteriorated so much after this second cycle - she lost half her body weight, the left side of her body stopped working, she couldn't eat, couldn't speak without stuttering, can't walk, you all proberly get the picture. Drs have now confirmed she can not have any more chemo as ironically it is killing her but they want her to undertake ten more sessions of radiotherapy to the brain. She has had five brain scans which appear clear but the Drs want to be preventive. I just wondered if there was anyone out there who can relate to being so far away? Any advice or just someone who understands what I am going though would be appreciated. Blessings to you all.
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