Hi Kate, I met with Basma yesterday to participate in the Research Study interview and what a lovely young lady she is. As I am a laryngectomee and some people find it difficult to hear or understand me sometimes, Basma showed me every consideration and kindness during the interview. I must say that I'm very pleased that CCNSW is undertaking this study as I started an Online Support Group for Laryngectomees on Facebook also 4yrs ago and, to date, we have over 600 members and a lot are from other parts of the world. We find this form of communication very successful as the support is there 24/7 "live", it is a "Closed" group so any posts or other information is secure, to be a member, you are closely scrutinised before you can join and there isn't the problem of using a phone and then having to wait days for an answer to your question. You don't have the hassle's of logging into an account plus there is always someone online to "talk" to any time of the day or night.............which is very reassuring if you are going through a stressful time and just need someone to "unload" on...........we are like a big family really bought together with a common disease but the sense of camaraderie is so special and comforting in times of stress. So I would recommend anyone with a cancer diagnosis (past or present) , or their carer's, family and friends, to get in touch with Basma to participate in this wonderful study for it will benefit us all in the future, the lovely Basma will guide you through the process and put you at ease, maybe you can even meet for coffee as we did. Have a lovely day Kate and everyone............:) Cheers Janet W ... View more

I'm so very sorry to hear about your diagnosis, be strong, I've heard of your type of rare cancer and if I can find some answers for you I will. In the meantime, trust in your medical team as I'm sure they are working very hard to treat you the best way they know how and with the best outcome..........stay positive 😘 ... View more