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September 2015
November 2016
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September 2015
Hi Greg & De
It was so lovely to hear your voices and your stories. I find the sharing incredibly moving, and while each journey will no doubt be individual, for me there is comfort and resilience just hearing about everyone's experiences. My oncologist suggests I rest and recover from surgery and radiotherapy for a few weeks and then do a whole body PET scan before thinking about anything else. I have found radiotherapy to be challenging and fatigue extremely difficult to cope with. It's taken a while to keep going out and moving around in the real world, because hospital time just eats your life up.
If you feel up to it, please stay in touch and I will hope for the best for all of us. Things would have been very different just a few years ago.
Cheers
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September 2015
I was diagnosed over Easter earlier this year - non small-cell lung cancer. I had 6 week combination of radiotherapy and chemo, and it took more than 6 weeks to recover during which time I could barely eat, but I did get back to work for two days a week and thought I was performing well. I was told this was the rest chance of cure if a long shot, but at the start of August they discovered a brain tumour and further brain lesions, and within a couple of days I had neurosurgery to remove the tumour. I've just started 2 weeks whole brain radiation, and then will see if the medical oncologists offer further chemo or other treatment. The fatigue is soul destroying.
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September 2015
I am still waiting to hear what the medical oncologists might offer me. My non small cell lung cancer has spread to my brain and I'm in palliative care and just coping with whole brain radiation. I don't know the drug tarceva, but I suppose most hope is in the new drugs and treatments that are being discovered every day. Stay alive for as long as possible. Clive James recently said just when his leukemia treatment stopped working, they offered him a new treatment and he's in remission again - and still reading and writing and working. we should be so lucky. My children have grown up and the youngest is due to get married in December. I've spent a lot of time thinking about it, and decided that when your kids are young is the best time of your life. Enjoy every minute. We never had enough, we were always broke with 3 kids, but it wasn't about money or stuff but the time we spent together with family and friends. Good luck.
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September 2015
Hi Nathan,
I have had the same diagnosis this year, even though I'm a lot older. Its been very confronting, and I'm just about to start 2 weeks whole brain radiation to bring symptoms under control. I had neurosurgery 10 days ago, and don't know whether there will be follow up chemo. Good luck. I'm happy to chat if it helps.
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September 2015
I was diagnosed with lung cancer over Easter 2015. My daughter is an oncology nurse and quite keen for me to undertake treatment, especially when the doctors said in the first instance they'd treat for a cure. I was so sure it wouldn't happen to me, I would be okay, and indeed after 6 weeks radiation and chemo and more than 6 weeks recovery (including 2 weeks back in hospital to control symptoms). I even made it back to work 2 days a week, which was wonderful because it did feel like life would go on. after a hairy drive to work I rang my daughter and she picked me up and we went back to the hospital - a CT scan revealed a brain tumour and another 6 lesions. I was in surgery before I had time to think, and the operation seems to have been a success - I have just been fitted for a mask for whole brain radiation starting tomorrow. Everything has happened so fast I haven't had time to think or assimilate, still waiting to chat with my GP about where this is all heading, though I have made arrangements to involve the pallative care nurse and services. I'm struggling to stay positive and wonder when its time to just enjoy any time you have left. I'm feeling very tired.
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