my husband of 44 yrs has terminal cancer has a lot of pain sleeps most of the time I feel like we are on a roller coaster ride (I am scared of roller coasters) life going up and down last week in hospital blood transfusions etc etc this week home and sleeping 21hrs a day ,but this roller coaster can only get worse then it will crash ,I want so much to help him pay attention to every change but its hard to know what do you accept as thats how it is and what do I get help with ,I am lucky I have an awesome support team but still its me with him 24hrs I am the one deciding everything ,i went to cancer councelling when I could they were awesome would recommend it if you can do it .the biggest thing they help me with is understanding I am suffering anticapatery grief ,I am losing my husband losing him doing things, him making decisions etc ,buggar how am I suppose to live without my best friend I met him when I was 15 I have several friends relatives who have been through this but I am sure even with that I am going to be a wreck what I would like is some advice on how to deal with isolation I have to be home with him,i try and keep myself busy doing quite things while he sleeps tell my friends if they want to see me they have to come visit ,but still spend a lot of time on my own, too much time, to think about my reality and how different it is to most peoples I was hoping by going in these forums that i would hear similiar stories similiar realities some times I will share some of the weird and wnderfull things that only happen to people in our situtions thanks
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