Hi Ridgy I was Diagnoised with the same cancer back in 2009 after nearly 5 years of investigation to find out whats wrong with me. Living with NETS is a life style change and in most cases people can live a relativly live long and near normal life. That blue book you were sent was from the Unicorn foundation which has support groups in nearly every capital in Australia. Back when I was Diagnoised there was no such thing. If you are unable to attend any of there meetings you can always join in on a closed forum they have and they regulary have group hook ups via the internet for those that are intrested. Happy to help out with any questions you may have or wish to ask. I have had lots of surgery including small intestine and have had 11 rounds of PRRT and also been involved with clinical drug trials finding new drugs avaiklable to us. good luck and hope to here from you.
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