I'm a stage IV melanoma patient with BRAF mutation as well. I've been diagnosed in october 2015 during my second pregnancy with no primary. I started with mekinist and tanfilar in november 2015 until august 2016 with a complete response. I have now no evidence of disease and don't take any treatment anymore. I was a lucky one. Keep positive and meditate it was very helpul for me to stay focus on recovery and deal with anxiety. My kids helped me alot as they are both under 3yo and i wanted to stay here for them. Never give up and eat healthy. I dtopped my treatment because my oncologist and i wanted me to go onto an immunotherapy trial and i needed a wash out period but the tumours had shrank so much i wasn't eligible so we waited another month and we are still waitibg for them to grow back. They are now nearly inactive. I had metastasis in my spine pelvic bones and both armpits. We don't know how long it's going to last but I'm hoping forever. Apparently my immune system somehow took over . So i hope you'll be a lucky one too. These meds are great and i had bad side effects the first 6 months then it got better. The fever and shivers are the worst but it was all worth it at the end. It sounds random but keep positive and you may win the fight like many these days!
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