Hi Kerr I also have adenoid cystic carcinoma (breast) and have known I've had it or something not right for many years. Last year I was formally diagnosed after pushing to get noticed in the system just recently I have has a unilateral mastectomy and now I am looking at chemo or radiation to blast in case of remnants. My condition is triple negative so yes I need to get on to it. But it has been hard to find anyone else with this condition. However I'm based in Melbourne not Sydney :( Fiona
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.