Hi Kerr I also have adenoid cystic carcinoma (breast) and have known I've had it or something not right for many years. Last year I was formally diagnosed after pushing to get noticed in the system just recently I have has a unilateral mastectomy and now I am looking at chemo or radiation to blast in case of remnants. My condition is triple negative so yes I need to get on to it. But it has been hard to find anyone else with this condition. However I'm based in Melbourne not Sydney 😞 Fiona
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