Hi All, Sorry if this offends and I hope that I don't come across like a drama queen as I know my condition is nothing compared to what some have gone through and are going through but I'm just reaching out to see if there is someone or others that are going through or have gone through the same as me. I'm doing my head in at the moment with all the thinking and I was wondering if someone has any advice. I am 36 and we were doing IVF as I have PCOS and we haven't been able to have kids since we have been together (which is 15 years). We were finally given a Drs name that could help me and we were almost at the egg stage but then they found, when doing a lining removal and polyp removal that I have Complex Atypical Hyperplasia cells in the polyps. I have managed to get into a trial which involves the Mirena device (and I also got the drug trial branch of this particular trial) so have both those things hitting the cells. But they are still telling me I need to have a hysterectomy after we finish having kids. If this trial treatment works. They say they are having a 60%-70% success rate and if it doesn't work then I have to have a hysterectomy anyway. I have had my CT scan and all the blood test and luckily have no cancer signs anywhere else. This all scares me and I really don't want to have a hysterectomy and after years of telling myself you will never have kids and being ok with it, to then be told yes, you can and to be almost at the egg implant stage to then be told you are maybe going to lose your chance, it has really messed my head up. I have tried to google all the pros for a hysterectomy to try and give myself some positives to look for but I have not found many and only ever keep finding negative stuff. At the moment I can't even be intimate with my husband without bursting into tears and thinking the whole time about having a hysterectomy. I thought i was doing good and had gotten over the whole being upset part weeks ago after my second surgery which was 3 weeks ago. Just didn't know where else to look for people who may be able to offer some advice. I feel like I have the cancer you have when your not having cancer and not sure where else to look. We lost my husbands mother 2 years ago to Ovarian Cancer then a close friend 3 months after that to Brain Cancer and I think I still have all that in my head too. If this is the wrong place to do this could someone point me in the right direction? Thanks in advance!
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.