Hello everyone, new here. Mum was diagnosed with advanced lung cancer (not a smoker) in August, and after chemo, and now immunotherapy, hasn't worked, we're looking at a bit of a tough few weeks/months ahead - our only hope at this point is a drug that costs $14,000 a month, which we can't afford, and are working towards some type of subsidy/exception to get the drug at a cheaper cost. Due to painkillers etc that Mum's on atm, she's pretty much 100% dependent on someone being there with her all the time as she's quite frail and at times very out of it due to the pain killers. Both my parents are elderly - Mum's 70 and Dad's 74 - and to be honest Dad's struggling a bit at the moment and it's affecting the environment they're living in, as he's getting overloaded/stressed and quite uptight and stressed and Mum's pretty much over the pain/what lies ahead atm. We're currently accessing paliative care, and are in the process of organising some form or respite care, for both their sakes, but I'm just wondering (selfishly) if I'm doing enough to help from my end. My brother and his family live 600kms away so can't be there (no fault of theirs) and while mum and dad are recieving very frequent phone calls from friends and relatives, in terms of being there in their home, there's nothing during the week, which is overloading Dad. I work 8am to 6pm most days during the week, but have been spending roughly 9am - 4pm each Sat and Sun at their house to relieve dad/help mum. Just wondering based on others' experiences in here, if I should be doing more during the week? I call each day in the morning during the week, but tbh I don't visit during the week and am starting to feel very guilty. I've made it clear that I'm avaialble whenever they need me during the week via phone, and when needed can help with dropping off at medical appointments etc, and my workplace is very supportive, but just wondering what others are doing in this situation? By the time I finish at night, mum's pretty much ready for bed, and I've avoided popping in on the way home from work for that reasion, but bit worried about dad. Part of me wonders (the guilts again!) if I'm almost glad that I'm working during the week as it's a bit of a distraction.... Anway, any stories/advice from others would be appreciated. Ben.
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