This website uses cookies. By clicking Accept, you consent to the use of cookies. Click Here to learn more about how we use cookies.
Accept
Reject
Cancer Council Online Community
Need help nowContact
Join
cancel
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for 
Search instead for 
Did you mean: 
MariusNicholas
Occasional Visitor
1
Post
0
Hearts
cancel
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for 
Search instead for 
Did you mean: 
since May 2018
May 2018
cancel
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for 
Search instead for 
Did you mean: 

Metastatic Epiteleloid Angiomylipoma /pecoma

by in Diagnosis and treatment
May 2018
May 2018
Hey. I am trying to get some responses on behalf of my dear aunt (42years old) who is diagnosed with a very rare type of cancer: Metastatic Epiteleloid Angiomylipoma/  pecoma.   She has had operations earlier, trying to get rid of it. But it has come back. Right now the cancer has spread under the ribs and it's not longer possible for the surgeons (at least in norway), to remove it. She has therefore tried the medications: AFINITOR and VOTRIENT, but the medications have not worked. They have only given her more pain.   Because there are so little information to get, we have shared her story on facebook, and now I am posting it on forums, in hope of getting some input on possible treatments/procedures. Please reply, if you know something that may help her, or know of someone for us to contact to get help or info.  ... View more
Connect
Contact us
More information
Join the community
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work. We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.
© Cancer Council NSW 2024 Head Office Address: 153 Dowling Street, Woolloomooloo NSW 2011. Cancer Council NSW is registered with the Australian Taxation Office as an Income Tax Exempt Charity: Charitable Fundraising Authority No. 18521.