Hey. I am trying to get some responses on behalf of my dear aunt (42years old) who is diagnosed with a very rare type of cancer: Metastatic Epiteleloid Angiomylipoma/ pecoma. She has had operations earlier, trying to get rid of it. But it has come back. Right now the cancer has spread under the ribs and it's not longer possible for the surgeons (at least in norway), to remove it. She has therefore tried the medications: AFINITOR and VOTRIENT, but the medications have not worked. They have only given her more pain. Because there are so little information to get, we have shared her story on facebook, and now I am posting it on forums, in hope of getting some input on possible treatments/procedures. Please reply, if you know something that may help her, or know of someone for us to contact to get help or info.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.