I have checks and a biopsy taken every 6 months. I had radiation 5 Days a weeks for 6 weeks. My body was terribly burnt after 2 weeks and it also caused gastro. Even now I can't be far from a toilet. I tried to find other cases contacted my oncologist etc no-one wanted to know. No record of this ever happening in their view but I found 3 women who had the same problem about the same time I did. My GP diagnosed me and my neurologist did the same. I have sensory neuropathy no feeling below the waist. If I had my time again I would not take their w oird but get a second opinion and seek all info I can. But at this stage you are so scared and you don't know what to do accept the doctors d i agnosis that this is the way to go or not. I can never have chemo or radiation again because of the damage it did to my body. So if I get cancer again and they can't operate They can do n o thing for me.
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Hi Maggie, It has taken a lot of work but I am upright I can't really say walking because I don't classify it as walking. I wear a brace on my left leg for my dropped foot my right foot has improved but I still have falls. Last one broken wrist, cracked rib and torn tendon in shoulder. I have realised now I will never be normal again. I have pushed my body to its limits with physio and we also put a swimming pool in which was a terrific help with physio. But I have learned you can push and wish but your body does not re cover from the beating of cancer. I was very fit and watch what I ate this disease is heritary in our family. I also has melanoma about 7 years ago again heritary in our family. I am still on Palexia, endep etc for nerve pain. I have tried going off my meds and have halved the dosage but can't do without them too painful. I wish you luck with your journey.
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May 2017 I was diagnosed with anal cancer, because I was have cancer mapping done every 6 months they caught it quickly. I commenced chemo and radiation in June 2017 for every day for 6 weeks (radiation) and two courses of chemo. On completion of these courses I found 3 weks after I finished I started collasping. My legs would not hold me up and the nerve pain I was experiencing was excruiating. within a couple of weeks I was unable to walk without crutches and then even then would fall over for no reason. I had a spinal laminectomony in October which relieved some nerve pain but not all and I was and still am on a high dosage pills. After the spinal op I came out with a dropped foot which has not remedied itself. I have had physio three times a week 2 hour sessions since last year and I am starting to take my first steps to date I have had over 30 falls. If I knew I would not walk after the cancer treatment I may have looked at other treatments. Has anyone else had this expereince I am feeling isolated and no one can give me a diagnosis on how long or if I will get better. I was a very independent person before now I cannot drive and I have to rely on my husband or someone else to be taken to doctors appointments etc. My GP diagnosed me straight away as he has seen a lot of cases like this but I have only heard of one other. Has anyone else experienced this type of side effects from chemo and radiation?
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.