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Rhonda
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June 2018
March 2020
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March 2020
1 Kudo
I have checks and a biopsy taken every 6 months. I had radiation 5 Days a weeks for 6 weeks. My body was terribly burnt after 2 weeks and it also caused gastro. Even now I can't be far from a toilet. I tried to find other cases contacted my oncologist etc no-one wanted to know. No record of this ever happening in their view but I found 3 women who had the same problem about the same time I did. My GP diagnosed me and my neurologist did the same. I have sensory neuropathy no feeling below the waist. If I had my time again I would not take their w oird but get a second opinion and seek all info I can. But at this stage you are so scared and you don't know what to do accept the doctors d i agnosis that this is the way to go or not. I can never have chemo or radiation again because of the damage it did to my body. So if I get cancer again and they can't operate They can do n o thing for me.
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March 2020
1 Kudo
Hi Maggie, It has taken a lot of work but I am upright I can't really say walking because I don't classify it as walking. I wear a brace on my left leg for my dropped foot my right foot has improved but I still have falls. Last one broken wrist, cracked rib and torn tendon in shoulder. I have realised now I will never be normal again. I have pushed my body to its limits with physio and we also put a swimming pool in which was a terrific help with physio. But I have learned you can push and wish but your body does not re cover from the beating of cancer. I was very fit and watch what I ate this disease is heritary in our family. I also has melanoma about 7 years ago again heritary in our family. I am still on Palexia, endep etc for nerve pain. I have tried going off my meds and have halved the dosage but can't do without them too painful. I wish you luck with your journey.
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June 2018
1 Kudo
May 2017 I was diagnosed with anal cancer, because I was have cancer mapping done every 6 months they caught it quickly. I commenced chemo and radiation in June 2017 for every day for 6 weeks (radiation) and two courses of chemo. On completion of these courses I found 3 weks after I finished I started collasping. My legs would not hold me up and the nerve pain I was experiencing was excruiating. within a couple of weeks I was unable to walk without crutches and then even then would fall over for no reason. I had a spinal laminectomony in October which relieved some nerve pain but not all and I was and still am on a high dosage pills. After the spinal op I came out with a dropped foot which has not remedied itself. I have had physio three times a week 2 hour sessions since last year and I am starting to take my first steps to date I have had over 30 falls. If I knew I would not walk after the cancer treatment I may have looked at other treatments. Has anyone else had this expereince I am feeling isolated and no one can give me a diagnosis on how long or if I will get better. I was a very independent person before now I cannot drive and I have to rely on my husband or someone else to be taken to doctors appointments etc. My GP diagnosed me straight away as he has seen a lot of cases like this but I have only heard of one other. Has anyone else experienced this type of side effects from chemo and radiation?
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