G’day budgie, I have stage 4 rcc, kydney cancer. Had my left kydney out about 6 and a half years ago then found spots on my right lung 1 and half years later. Started on Votrient but only lasted a few months as was destroying my liver. Then oncologist put me on Sutent and have been on this for about five years or more. Started on 50mg then reduced to 35mg then back to 25mg two weaks on and one weak off. Having CT scans every three months. Last year I had severe pain in my left knee and was collapsing regularly had X-rays, ct scans and MRI etc but doc couldn’t find anything. Saw a physio for a few months but did not achieve anything. Just took pain killers to help. Eventually the pain just disappeared. Woke up one day and it was gone. I still have like pins and needles in my feet and both legs have a permanent aching tired feeling which the doctors don’t know why. Possibly side effects of sutent but I also have thyroid issues and type 2 diabetes now too. Hope you get your issues sorted soon. Good luck. Cheers
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