March 2009
Hi all, This is a great idea. My journey has been a tough one but there have been many positives along the way though. My journey started in Feb, 2000 and culminated in a Non Alogenic BMT in Aug 2004. I had both Non Hodkins Lymphoma and Chronic Lymphocytic Leukemia, both aggressive. I was fortunate enough that after the BMT I was able to witness the birth of my 2 beautiful grandchildren. The treatment, and horrible drugs like Deximethisone and Prednisone, and their side effects although frightening at times, was very much worth it. I must say I understand the feeling of guilt too as a friend I had in Brisbane lost his fight due to no matching stem cell doners being available world wide for him. I had 2 doners living right in Brisbane where I lived at the time and went on to survive my cancer. It still brings tears to my eyes. Steve
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March 2009
Hi Anniem, Great idea and look forward to "survivors" posting things on the site, Now there are two who have posted. Steve
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October 2007
Hi, I had CLL and NHL, my NHL was only in my lymph nodes ( not sure of the stage) but agressive enough to warrant major treatment as chemo wasn't working for me. The CLL was very agressive too. I had a Bone Marrow Transplant on Augist of 2004 at RBH and it worked very well for me but, if your NHL has marched on to the liver I have no idea. I can only suggest that you speak with your oncologist and keep asking questions 'till you get an answer as to what can be done. Seek second and third etc. opinons if necessary. Just don't give up! Hang in there!
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