I was diagnosed July 2nd and my story is a frustrating sad one. I was living overseas with my husband when symptoms showed up. I came home to get diagnosed as healthcare in US were not helpful and were very expensive. So now I’m here living with family but have no stability or life or our own here. We had to drop everything we built in the US and are living a nightmare now, trying to find peaceful happy moments in the good days. I was hoping to find people with a similar diagnosis or any advanced diagnosis at the same age (30s). It’s scary but I find experiences differ between us and our older counterparts and I just need to hear other experiences. I feel so alone.
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