Hello Matt, Sorry to read about your mother in law I am 46 and was diagnosed with a GBM June 2017 after having difficulties with my left side and then having a seizure. After the biopsy came back that it was a GBM I decided to have it debulked even though there was a high chance I would be paralysed on my left side. This was done 5 days after my seizure and I came out with a slight deficit, I could still walk but was with a limp and my arm was weaker. Once my wound healed from the craniotomy I started radiotherapy/chemotherapy, this took a lot out of me I was having focal seizures so they kept on putting my steroids up. By the end of radiotherapy I could hardly walk and they would actually meet me at the door and wheel me in. I finished my radiotherapy course of 6 weeks and went to an appointment with my general physician, she took one look at me and said I wasn’t right and put me in for a MRI the next day. At this point I was still having focal seizures and my eye sight was getting blurry. The MRI showed the tumour had returned already in the same spot and was bigger, this was only 12 weeks after the first removal. I had it removed again even though I was told I would definitely be paralysed but I came out the same as before. My general physician also put me on to a neurologist who was able to get my focal seizures under control. When I came out of hospital I went to my chemo oncologist as I wanted to start the next stage of treatment which is to increase the dose of chemotherapy. He didn’t want to as it had come back so quickly. I changed back to an oncologist who I had when he was on leave.She listened to what I wanted and I started treatment once my wound had healed. I have now done 15 cycles of this treatment, my body is tolerating it ok I do get tired and have a bit of nausea but it’s not to bad. My white blood cell count did drop last blood test but I was still able to take the chemo. I have gone through a lot over the last 18 months and there is a lot I haven’t touched on as it will take all day to read. If you have any questions please don’t hesitate to ask I know what my fate is and I am able to discuss it openly. Some people can’t understand it but my theory is it’s no ones fault I will be positive and get the most out of what time I have left. Take care Colin
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.