Hi Boony, You're brave to have gone through that and you need to know it. Regarding side effects, I have similar nerve damage. Treatments are harsh. Breathing is important. Deep breathing. There are websites on this. To treat your damage, you can start taking a widely available herb called Withania Somnifera. In India this is called Ashwaganda and for a more pure form you can get this from an Indian grocery store for 1/4 of the price Chemists or health food stores sell it for. Withania is the same ingredient. It's the same thing. You don't need much. I just take 250 mg a day (1 tablet). That's a low dose. You need to stay away from sugar because this feeds cancer cells. An alkaline diet helps a lot. You probably get enough exercise from your work being a tradie. Look up "cytokines" and inflammation. Look up cancer and inflammation. Cancer is a personal journey and although treatments are not tailored to us (but rather a protocol of 2-4 different types of chemicals at any one time) we are human beings first. Some doctors forget we are somebody's brother, or sister or mother or father. It affects everyone too especially children. They don't like to see their parents sick. They can get hurt psychologically as a result. If you believe in a God, this can help. I don't know how in a scientific sense, but it can as can a walk in a forest breathing in oxygen. Stress is bad because it produces cortisol (sugar), while praying and meditating has a relaxation effect on the body, so learn to have a lifestyle that allows you to nurture yourself as well as those around you. God bless.
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Hi...don't be scared. Your story sounds like the docs could catch the cancer early. My dad has had stage 4 terminal lung cancer for 18 months and he's still okay but they didn't catch this early. Dad left it too late due to pride or embarrassment. He won't say. He was a candidate for a trial as he also had a Non Hodgkins Lymphoma and though the treatment is working on his cancers, the side effects make him weak. So my advice is, change your diet, eat fresh organic vegetables and fruits, no carbs (these turn to sugar in your body, and cancer cells feed off sugar). PET/CT (some MRI) tracers they inject you with might attract cancer cells and are highlighted by the tracer. There are different types of tracers. An Avid 18 tracer can show up different cancers to what an Avid 11 can for example but your radiologist is the best one to ask about this. Your radiographer may not know about the No.11. I don't know if they use this in Australia. My doctor won't tell me. Because imaging can pose a health risk to us, it's wise to thoroughly detox from radiation exposure and radionuclear tracers and other contrast dyes. I wish someone had have told me about this decades ago. I have damage from treatments because I wasn't educated about them early on. I could have taken precautions if I had been. Just drink a hell of a lot of juices and keep your body alkaline. Keep up the Vit C. Bs. B12, lysine (helps with ulcers that treatments can give you), and general nutritional care but the nurses are good with any advice you need. Chicken and vegetable soup (with bones) is good because you get the gelatine that your bones need plus it's more alkaline than a hamburger on the run (that sounds funny but you know what I mean). Protein can be acidic but red meat is more of a problem than white. Sardines if you like these are healthy. Smaller fish and canned fish is nutritious. Stay away from sugar and carbohydrates. Some potatoes though are nutritious including sweet potato. To take comfort, billions of people have gone through their own journey and have come out the other side to write blogs like I'm doing now to help you. No matter what stage, you can always beat this with proper health care and nutrition. All the best.
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Hi PhillWT - don't worry. I was treated for an aggressive b cell NHL 30 years ago and had MACOP-B (which was similar to your regime recommended but more toxic) however, you know...the treatment didn't work for me in the end I was told after massive radiotherapy. The hospitals had discharged me to live my life out at home and they said "you won't see your baby on his first birthday". How horrible!!! The point here, Phil, is that doctors are wrong and you are right to assume they can only advise from statistical information which is only based on a mean score of a bell curve or whatever they use these days. Honestly, we can prove them wrong. If you wish to live longer, you will. I didnj't want anybody to raise my baby so I prayed and begged God (as a major in philosophy God is hard to define unless you believe in something, blindly) and whatever/whoever heard me or whether it was my own will, here I am 30 yrs later. The treatments caused a different type 19/20 years later but I got over this too. nearly 12 years ago, I was told I had 12 weeks and to find a hospice! The social worker told me this over the telephone. They should be gagged..really when they talk to cancer patients like this. My NHL was also a rare B cell which became a sarcoma and usually you don't get over these or they come back quickly but seriously....nowadays, lymphoma is one of the easiest cancers to treat. I would radically change your diet if you haven't already to an organic diet only fresh fruit and vegetables and have a look at these sites which have helped me. I wish you all the best and feel free to post. I won't be here often but I just wanted to give you some hope today. You will see your children grow up. Believe it. Ask for it. Live your life as though it will happen. Do things that make you happy. Hang out with some mates, go fishing, do whatever makes you happy. And last of all, don't be down on yourself for being down about cancer. It's a natural feeling. Also be mindful that doctors and nurses document our feelings and moods when we are visiting them. They shouldn't but they do and this can change how they speak to us. Act strong when you are in front of them if you can. I think it's an intrusion on our personal feelings and they have no right to document if "she had glazed eyes when I told her...." etc. Or "he was angry today about ......". It's nothing to do with their medical assistance. They should just focus on the medical services patients want to know about. As for tailored therapy, have a look at this and I've left some other links that might help you understand what's going on in our modern medicine system. There are other options but cancer is a personal journey so I can't advise you what to do. I can only give you some links and my personal story. If I have another cancer (will know tomorrow or not, I will now choose alternative therapies) because modern medicine although it does help in some instances always makes your good cells weak and can destroy them when you need them to heal the other sick cells. It is just logical. Look at the CBS news link below. All the best. https://www.cbsnews.com/news/does-your-doc-have-ties-to-big-pharma-how-youll-be-able-to-find-out/ https://www.youtube.com/watch?v=ddADeIsXrOw https://www.sciencedaily.com/releases/2008/12/081203184932.htm https://rgcc-group.com/ (special dna test our docs won't do) http://www.alternative-cancer-care.com/ http://oxygenhealingtherapies.com/ https://www.cancer.org/content/cancer/en/search.html?q=all+b+cell+NHL https://www.ncbi.nlm.nih.gov/books/NBK65951/#IX-E
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.