November 2018
5 Kudos
after experincing headaches and vision loss/face numbness and nose bleeds for 2 months i took myself to the hospital (4 weeks ago now). GPs kept telling me it was sinisitus / hayfever / stress and to 'ride it out' giving me antibiotics and sending me on my way.
After scans and a visit to the hospital i was rushed off to have emergency surgery to save my eyesight and to remove some of the tumour to take a biopsy, a week later i was informed it was a very rare and aggressive brain tumour.
I'm 27 years old and have been completly overwhelmed and shocked by this news.
I'm looking for support from anyone who has gone through a similar situation. i have asked all specialists and anyone involved to not tell me how bad it is . im not ready to hear that yet. i need to stay positive and see light at the end of the tunnel. im realising there is not many forums for brain cancer so reaching out to anyone who has some they could share.
thank you
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November 2018
1 Kudo
hello. ive come on here to find some people that are going through a some what similar situation . ive just read your forum. firstly im so deeply sorry for what you are going through. Im 27 and went to the hospital 4 weeks ago with headaches/loss of vision. after having emergency surgery i found out i have a very rare and aggressive brain tumour. ive asked all my specialists to not inform me of the severity as i need some hope. reading your forum i just thought you were really brave in sharing. im not quite at that point where i feel i can talk about it as its still a bit soon but i find strength in reading other peoples stories. i hope you dont mind me reaching out but i just wanted to thank you for sharing your story. its so daunting going through this and ive been trying to find support groups online and in person but im relising theres not that much out there . i wish you all the health and happiness in the world. stay strong
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