Thank you for your replies. I appreciate the helpful advice. My husband got results back from a place in California who examined the genes of his liver biopsy. His report came back saying that it is 90% likely that his primary is cholangiocarcinoma, or bile duct cancer. Originally, I thought it was good news because we finally know the primary so we can treat it better. His calcium levels were high, so we were escorted into a different room for him to receive an IV to help with that. His doctor didn’t explain how horrible this particular cancer was. I researched it while sitting by my husband’s side and I started crying after reading the survival rates and symptoms of end of life. He has those symptoms... jaundice, abdominal pain, back pain, fatigue, personality changes, and his feet are extremely swollen. He asked what was wrong and I said nothing, since I could barely talk and didn’t want to scare him. I don’t even think he’s researched this cancer yet. I don’t think he understands the severity of all of this. I don’t want to bring him to that dark side. All his doctor said was that we would start a new combination of drugs for his chemo treatment. He didn’t explain any particular plan or any other options. We don’t even know when we’re supposed to go back to the office. That was yesterday. Today, out of frustration and lack of answers, I contacted my insurance company and MD Anderson in Texas. Our insurance covers treatment there. We just have to wait to hear back from the insurance department at MD Anderson, in order to set an appointment. His next chemo date with the new drugs is February 18. The man on the phone said that they’ll try to get back to us as soon as possible but if we don’t hear back before he starts chemo again, then we’ll have to wait until he’s done. I’m still more scared than I’ve ever been in my life. I just hope that some how he makes it. I don’t know how bad his cancer is. They haven’t done any screenings since he was first diagnosed with cancer in early November. All I know is what the internet has told me. I hope that MD Anderson will give us some answers and a plan to tackle this. I need him. Our baby needs him.
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My husband is 25 years old. His radiation doctor said that with his symptoms, screenings, and biopsy that he most likely has stage 4 colon cancer. He has a tumor on his sacrum and lesions on his liver. He also has issues going to the bathroom. He can’t hold a steady stream and his stools are very wide. We originally thought it was a pinched nerve since that’s what the doctor from the emergency room said at the beginning. Our baby is 11 weeks old and he hasn’t been able to hold him since he was maybe 2 weeks old due to being in pain. I’ve been taking care of our baby with the help of my mom. The tumor on his sacrum is causing him to have excruciating pain. He’s currently on numerous pain medications and has been sleeping on the couch for a couple months because it hurts for him to lay in bed. My husband finished radiation last Thursday. He had a colonoscopy and endoscopy but there were no new findings. He had his blood sent out to look for anything in his genes but that came back with nothing as well. The radiation doctor said that he thinks his immune system fought off the original site of cancer, and that the stronger cells traveled to his liver and sacrum. His Oncologist diagnosed him with CUP (Cancer of unknown primary). We’re expecting to start chemo on Monday, or before depending on how fast the drugs come in. Should we get a second opinion or just start chemo since it’s very aggressive? His Oncologist contacted a Doctor at Memorial Sloan Kettering Cancer Center in New York since she specializes in CUP and he said that she suggested the same Chemo drugs as him. We have no idea what we’re doing and just want the best possible outcome. I’m not worried about money, I just want my husband to be healthy. I don’t want him to die. We’ve been together 10 years and just had our first wedding anniversary on January 7. I’m petrified. I want our baby boy to have his daddy and I don’t want to lose my husband. He’s everything to me and I hate seeing him in pain like this. I never thought this would’ve happened. We planned on having a big family and growing old together. I’m basically venting and asking for any advice, please. I don’t know what to do.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.