Hi Simon et al Your posts have been enormously helpful for me as I help my mom in her recovery from tonsil cancer. She's at about 6 weeks after the completion of radiation (concurrently with Erbitux ) and about 3 months after neck dissection. So much of what you've all shared has been reassuring. The crazy mucus, the radiation burns and the pain that absolutely sucked after the treatment was over and we thought things would start getting better. Anyway, one thing I haven't seen and want to ask about is neck cramps (cervical dystonia?). Her neck started to get knotted and tense a week or so ago, but now it's totally cramped and locks up to where she can't even sit up without massive cramping and seizing. It's affecting her ability to sit up, eat, sleep, etc. She's on day 3 of this and I'm worried about her losing a ton of weight again. She really can't afford to lose any more. I'm getting her some massage and physical therapy, but does anyone have any ideas for something that can help with immediate pain relief or getting things to uncramp? (She's taking some muscle relaxant and ibuprofen, but neither help much). We even tried CBD cream and biofreeze but nothing helps. Is this going to be a long term side effect? I've read that radiation fibrosis can set in any time after treatment (like a week to even 6 months later). Anyway, thank you for sharing all of the experience and advice; it's been tremendously encouraging and supportive! Kind regards Sarah
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.