Hi Mel, sorry to hear about your diagnosis. I was told I had incurable bowel cancer in May 2017 which was in my bowel, lymph nodes, liver and lungs and given 1 to 2 years. I responded so well to treatment that in September 2018 I had my lymph nodes and section of bowel removed, my liver remains cancer free and I just have 2 nodules in my lung which are treated with chemo. It is now getting closer to 5 years. I stay positive, have written a children's book and take each day as it comes. Nobody knows how you will respond to treatment so I wish you good luck.xx
... View more
Hi there, I was diagnosed with incurable bowel cancer with spread to lymph nodes, liver and lungs in May 2017. I was told I was incurable, would have palliative care, surgery not possible and I would have 2 years. I have had panitumimab, iranitecin and flouracil 5fu every fortnight with breaks in between. In July 2018, there was no trace in my liver and lungs and I was allowed surgery I had a bowel resection and lymph nodes removed. I still don't have my primary tumour though I had a regrowth in my lungs. It will be 4 years in May, far more than I ever imagined. Stay positive and don't give up.
... View more
Hi there Sorry to hear of your diagnosis. Stay positive. I was diagnosed with incurable stage 4 bowel cancer in May 2017. It had spread to my lymph nodes, liver and lungs and I was given 2 years. I started chemotherapy in June 2017 every fortnight. By May 2018, my liver and lungs had a complete response, no sign of cancer cells. In August 2018 I was classed as a miracle and told that they could now operate. I had my lymph nodes removed and a section of my bowel. In November I was told that I was cancer free. Unbelievable news! Unfortunately in January 2019 my CT scan showed small regrowth in my lungs because I haven't had chemo since August 2018. My bowel and liver are still cancer free. I have no primary tumour anymore. I have never been sick with the chemo though I do get mouth ulcers and diarrhoea but you learn to live with it. I don't let the cancer stop me doing anything. I have had 5 hours of chemo today and a 46 hour infusion going in until Thursday but tomorrow I'll be walking 5 miles with my dog, taking mum to doctors, hairdressers and shopping and out for lunch then back home for another dog walk. I can also fit in a week's holiday between treatments. World First insurance are fantastic. We can't change our diagnosis but I always think they wouldn't give us treatment if they didn't think it was worth it and whilst we are having it they are developing new treatments. I have already passed my two years and aren't ready to go yet. I never imagined I'd be in this position after my diagnosis. Stay positive, you are young. I am currently walking 100 miles this month for candlelighters.
... View more
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.