Hi Mary, Hang in there,it will get worse before it gets better, but it will get better. I have had 2 major & 1 minor surgeries over the last year & am almost finished my 2nd lot of chemo. My tumors have shrunk so much they are no longer visible on the CT & my ca 125 is down to 9. I'm getting stronger all the time & able to do more each month. I'm confident I'll make it to next Xmas at least & there are ladies in my support group at Westmead hosp who have been going for longer than 7 years. Considering my cancer was graded 3c I'm doing very well. There should be councilling staff at the hosp please don't hesitate to contact them whenever you feel down & if there is a support group join asap it will help you greatly. Most of all remember you're not alone. Karen ... View more

Hi snoopy I don't have a j pouch, but I do have an illeostomy pouch. I'ts quite a steep learning curve isn't it? There are colonostomy sites which cover many topics, some of which may be useful for you. They may also know of a j pouch site. There is also an ostomy assoc. in Sydney so should be others. Also the ostomy nurse at the hospital where you were treated may know who you can contact. In the meantime good luck & remember you are not alone there are many of us out here. ... View more