I know everyone says keep positive keep positive. All ican do is cry. I have Head an Neck Cancer. Sept 2018 had 1/3 of my tongue cut out, 1 months later to huge Germans 3.5 cm had developed in my neck. So after absolutely horrendous post operation 'recovery' - tube down my throat contually clogged with gorrey phlegm, nightmare nightmare traumatic weeks in hospital, no taste, no saliva, face ripped apart neck still, 8 months later, numb and like a solid piece of wood. Nobody ever talks about this sort of cancer - it even doesn't make it into the selection list in registering for this forum!!! Yet it is so so invasive upon one's life, only those who have had it know just how much I feel like I've HAD IT !! Now it's spread yet further - into a bone in my lower back, near my jaw & jugular vein, increased to 14mm in my RH lung, & a ''spot" on my scalp bone. I just don't know how or where to go emotionally. I know for sure that only one who has been through this before or is going through it now can really really help. Worst of all is that my Radiation Oncologist has told me that that its returning to the tongue. I can't handle this, it goes on & on & on. This is nothing but torture I don't know what to do. I start chemo next week but i really want to have immunotherapy as I believe that's my only hope with this aggressiveness of my particular cancer. I feel so much pain in my heart & so powerless, its like swimming in huge strong waves everday for 8 months & they just keep coming at me, wanting to beat them & stay alive but never seeming to be able to break through them, they're always coming on & on at me. I invite anyone who wants to reach out, please talk with me....
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