Hi April thank you for your support....its is well needed indeed....   well i got one   done on Monday and today i will finish....its a go of it tonight....no sleep....chocking lumps of mucus as i am sure you all have had and must sit up otherwise i could aspirate all that garbage into my lungs while sleeping........ but to be expected.....i am now starting to see the light at the end of the tunnel....thank you for you kind words of inspiration....   Bill ... View more

Thank you everyone....wow, i didnt expect that i would get all those responses....your words ring out in my ears and i will trudge forward to the last 2 radiations...one in a couple hours and last one Tuesday....i thank you all on this board for your support and knowledge...yes its a tough journey and rather unexpected one i would say...no one plans on something like this.   i will let you know how my body responds and the road it will take to get me to fully recover....   i can not thank anyone of you enough for your help and inspiration.....   Bill ... View more

thank you Capt. and thank you to everyone for answering my questions regarding my mucocitis and thrush....i started my  Fluzonazole today with 200 mg today and 100mg for next 4 days...i hope it can help because i havent been able to talk for weeks on end and i do believe the doctors know how to use the radiation but are oblivious to how to treat side affects...this should have been tended to weeks ago...my mouthe looks like tomato cut in half...the pain is off the map and i have very little to take for that pain....but my question is this....if my mouth is raw meat with the pain level about as high as a person could take without being admitted to the hospital....should i get my last 2 treatments in the morning and on tuesday ?   i have had to date 33 treatments of 2gy per treatment to a 2.3cm cancer in tonsil for a total of 66gy and 5 cisplatin chemo treatments to date...would it be wise to NOT get the last 2 radiation treatments and have to go to the hospital to treat the pain it will inflict as far as i can it may do etc....i just dont know how i could take 2 more blasts of tonsil and lymphs .....the 4 lymphs were at like 1.6gy...the 4 lymphs were less than 2 cm's   i feel if the dr looks at me monday afternoon he will say your doing great (as he always says) and lets get in there and get our radiation !!!....meanwhile i have sit home and suffer or go to the hospital....yes i take oxicodone 5mg liquid in my tube every 4 hours as needed but it just takes the edge off...not the pain...the pain comes thru loud and clear...i am getting nourishment and fluids thru the tube so i am good there but the pain is off the map....   if it were you....would you skip the last 2 treatments or at least post pone them if thats an option???   my mouth is an open wound... ???  i can not imagine what 2 more treatments on top of this would do ??  has anyone experienced this at the end.....??   thanks to all Bill ... View more

thanks Shane i saw the nurse yesterday and she looked in my mouth and gave me a scrip for that but when i looked up the side affects i almost past out...have yet to take it....your sure its safe ???  it can cause everything including death ??     i have it in front of me on my desk and may start it...its 100mg....take 2 to start and 1 a day for 4 more days   hope i live to tell about it....   thanks Bill ... View more

thanks Capt....i wil get some of the anti fungal and try to clear it up....thanks again.... ... View more

thanks Maurie..   i will do that   ....i am guessing what i have is quite normal for my condition ?   thanks Bill     ... View more

Hi Captain thought i would inquire as to whats going on with my mouth...since you seem to have a vast understanding of the tonsil/lymph chemo radiation procedure and had some difficulty.   i have the left tonsil and 4 lymphs in neck to refresh your memory of who i am....this Tuesday i finished chemo and i have 3 more radiations left counting today...i will be done next tuesday.   i have kept my weight up thru it all with the feeding tube thanks to you....and thought i was going to be out of the woods since my mouth pain is very significant but the Dr. is telling me its all normal etc....   in this past week i have been getting more and more irritation of the mouth and throat and a white film has developed as of this mornings inspection across the roof of my mouth....like someone went in and spray painted it...not just thick saliva but a mold looking white bumpy solid covering....i had a bit on the  back gums for weeks but not much and its not painful including the roof of my mouth...no pain...   now where he has shot the tongue on the left side is all swelled up and looks a mess and truly hurts and has hurt for a month....   now this morning my tongue has oblong circles of red on it and the tongue is also white but not like someone painted it like the roof of my mouth ???   yesterday the Dr. prescribed oxycodone 5mg to take every 4 hrs for pain....all this did not break out yesterday on tongue etc but he only looked in my mouth for about 5 seconds and said it looked beautiful???  the tongue broke out this morning and i guess the roof of the mouth got much worse overnight also.   reading about mucocitis on the internet it states if infections set in you can die from this ....???     you had told me you had a bad go with mucocitis as well as thrush and thought i may get your opinion on this and if i am worrying too much and just take the oxy and continue to feed and hydrate thru the tube and get on with it....the pain is multiplying and the slime in mouth has kept my tongue white all the time like its encapsulated in the white thick gel i now have for saliva and its been that way for many weeks .....   i dont know how serious this is or if its just the way it goes at the end... ???   i rinse and brush a few times a day....the baking soda and salt feels like i put razor blades in my mouth so i use warm tap water ?   sorry for such a long inquiry....but i am worried that the Dr. may know how to radiate but may not be so good at keeping me out of trouble with my mouth sores etc???   hope your doing fine in your recovery since you said your much better but got some way to go....   thanks Captain.... Bill ... View more

thanks Joe....i may try the ginger thru the feeding tube...i used to take a lot of vitamins until treatment and they stopped me but i have ginger capsules and i will crack one open and pour in a drink and shoot it....see if that helps with the nausea....thanks ... View more

thanks Capt...will truge along and wait it out....thanks again.... ... View more

Hi Capt i have what you had in respect to racid taste and cannot eat....had it weeks...using the tube you recommended that has saved my life...thank you once again...but....one more question...did you find anything at all you could put in your mouth to take out the 24/7 rancid taste ?   i have been sick to my stomach day and night due to the taste in my mouth and trouble sleeping as well due to it ....i have NO TASTE but rancid taste....it feels like small droplets leaching from my tongue that start real sweet then turn to battery acid and rotting flesh.....   if only there was something i could put in my mouth that is dry as the Sahara  and all slimed up and stringy as well as pure foam....when i put plain water in my mouth it really wakes up the sores from the radiation....i assume the taste is from the chemo cisplatin.   my tongue is white slippery slime covered, cant brush the tongue it hurts for a day if i try....my teeth must be crying for mercy....but i can brush the teeth.   having trouble sleeping as well as being awake not being able to get away from the tase and slime....   tried to chew gum....forgetaboutit...almost threw up...anything that goes in my mouth causes the gag reflex...even water if i am not very careful....something with taste of course gives me a rancid taste and the gag reflex starts...and hurts as well...   got 3 more weeks of chemoradiation left tonsil and 4 lymphs....then the real pain begins for awhile i guess from reading....then some let up....i sure hope i return to normal somewhat because this wont make it......i am not looking forward to each new day right now except knowing in 3 weeks no more treatments......24/7 nausea (take a nausea pill once and awhile if really bad...cant live on them) and the mouth of course....   all i have been doing is some water drinking by mouth to try to keep troat muscles going and using the tube for everything including water etc....   thanks BIll ... View more