Could someone give more detail of   cbd use.  I have the oil, but don’t know what to do with it. It is supposed to be very pure and comes with a dropper.  Do I swallow it?   How much?  How often?   I am 3 months out of proton therapy and still having scar tissue and difficulty swallowing because my swall muscles were weakened.    Thanks ... View more

Cat,   I did see that episode of Vice. I believe that it was the Mayo Clinic .   Yjeybwere injecting live. Measles virus into tumors and shrinking them.  At the time they said it was still in experimental stages.  What ever happened, I do not know. Have there born Clinical Trials.?    Roxy5g     ... View more

It was at its worst in the 4th or so. I got a lot of relief from the Magic Mouthwash.  The sores in my mouth and tongue were greatly relieved by constant gargling with it for the last few weeks of proton therapy. ... View more

I’m sure all of us wha have gone through with this have been given ‘ Magic Mouthwash’.  A must for the  mouth sores in mouth and tongue. ... View more

To avoid a feeding tube I made. Daily shake from Boost 400 calories,  Rivalus 2 scoops 500- 600 calories, banana, strawberry etc.  That gave me a base of about 1200 calories. I drank melted ice cream. I had already lost 17 pounds after the surgery, leaving me at 110 pounds.  I remained at that weight during the 6 weeks of Proton therapy.   I am 2 months out of radiation and  am at the same weight. The Radiologist told me it would take a year to get my weight back.  I believe that it was having Proton instead of the regular Photon that saved me.  It was still very painful, moith sores etc. but it seems to Bea less destructive way to kill rogue cancer cells in the throat. I can only compare myself to others in my UCLA support group. I wish that they met more often than once a month.    Roxy5g ... View more

Correction. chemotherapy was never recommended for me.  It was HPV virus squamous cell cancer. Check out Proton therapy .it was completely covered y my Medicare and a them blue shield supplement.  The whole experience  is hell and traumatizing.   There is no substitute for a good support system.   Roxy5g ... View more

I am a76 year young woman in good health and was diagnosed with tonsil cancer  October of last year. There was a 1.8 centimeter tomorrow in my right tonsil .  In November I had a radical neck dissection removing tonsils and parts of tongue base and surrounding areas. Out of 20 lymph nodes removed from the right side of my neck,  2 contained cancer.   I was being treated at UCLA and it was recommended that I immediately follow up with radiation. the pain of recovery from the surgery was so severe and debilitating that I was in fear of more of the same from radiation.  I turned it down and my family was very against me not having this follow up treatment to insure that it would not return.  I researched Proton therapy which is a form of radiation with less side effects.  The bottom line is that although there are 2 Proton Centers here in Southern California, I opted for one on the east coast under the auspices of Dr. Nancy Lee of Sloan Kettering in New York.  Although the treatment was uncomfortable and painful my side effects seem to be much less severe than my counterparts here at my UCLA support group. I am two months out of my radiation treatment.  There may be symptoms that have yet to show up, but I have some saliva back no mucus, can eat most things if they are wet and my neck has been unmarked for one month. I have very little trismus and my swallowing is good. i highly recommend finding a proton center and researching radiation for head and neck cancers. Radiation was never recommended for me. Only the future will tell how successful this treatment was. Roxy5g ... View more