I don’t mind answering, but it might be a bit shocking to anyone else reading this. (Anyone who is squeamish should turn away now) My story is a bit dramatic and a little bit unusual – most women get diagnosed after unusual bleeding, particularly post-menopausal. I hadn’t reached menopause yet, though I was starting to have very irregular bleeding, including times when it was ridiculously heavy, though I was in denial for a long time – thinking if I ignored it long enough, it would go away (very stupid of me). On one particular day I woke up haemorrhaging and realised there was something seriously wrong, so I went into the emergency department at the nearest hospital. By the time I arrived, I had lost so much blood, my heart couldn’t cope and I needed to be resuscitated. Fortunately I had made it to the hospital before I reached the crisis point – if you are going to have an emergency, the best place to be is sitting on a bed in the ED with a nurse standing next to you. The rest of that day is a bit of a blur, but I needed a blood transfusion & I was rushed into surgery for investigation & a biopsy; before spending the next couple of days in ICU. A few days later the pathology results showed it was a grade 2 carcinoma and they referred me to a gynaecologist. It took a week to see him and he took one look at the pathology report and referred me to a gynaecological oncologist. It took three weeks to get an appointment with the oncologist and I had the surgery two weeks after that. Fortunately I haven’t needed chemo, but I did have 25 radiation sessions. There is still a question on whether my lymph nodes were affected or not, so I’m going to need close monitoring for a few years. It is scary when you are still waiting to find out what’s happening, but even if it is the worst case scenario and it is cancer, most women with this type of cancer can be treated successfully. The biggest advantage is the uterus itself. It’s actually quite a strong muscle and it manages to keep most of the cancer contained, meaning surgery is often all that is needed. The surgery itself wasn’t too bad, without too much pain. I had four nights in hospital, but many women are able to leave after a day or two – they kept me in for four nights because I live alone. If you have support at home, you probably won’t need to stay that long. I was a public patient at a public hospital, but I can't fault how well I was treated. Hope all goes well for you. It is OK to be scared, but we have some good medical services in this country and you can get through this.
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Hi, I'm new to this forum, but I have been in the cancer alternative universe since February. I'm in Canberra and I had surgery and radiation. They are giving me a break from treatment for a couple of months until they work out if the radiation has worked or not. My cancer was in my uterus and I have had all my lady parts removed. I've been searching for a local support group - it can be for something simple as an occassional cup of coffee. Alas, all the local groups seem to be for specific cancer types and any female-related cancer seems only focused on breast cancer (not having a go at those lovely ladies with breast cancer; they need all the support they can get; but women get gender-specific cancer in other parts too. We should not be invisible in cancer support or discussions). There also isn't a general cancer support group in this region. Are there any other people in the ACT who would like to get together occasionally and help create a Girly Bits Cancer Support Coffee Club? (Breast cancer patients/survivors are welcome, but we will also talk about the area "down below". Men without a support group are also welcome too, but be prepared to hear about lady parts).
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I asked my radiation oncologist about getting super powers. He looked at me in surprise for a couple of moments before he realised I was joking. He did laugh - eventually - but for a couple of seconds I think he thought I was seriously asking for them. He is a very ernest young man and some of my previous attempts at humour seemed to go over his head.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.