My GP wouldn't give me anything because he said nothing would help anyway. But yesterday the hospital gave me Oxycodone to use when I have major spasms. I'm not a fan of opiates, but since surgery is coming up within a month I shouldn't have too many more major spasms. ... View more

I'm trying not to jump the gun too, but it's hard not to think about this stuff. The thought of dying hasn't fully set in, but I've noticed at the moment I've been taking the time to appreciate small things. I've been suffering from chronic depression for a while now and it's a weird but good feeling to want to live again. Kind of a cruel joke under the circumstances, but I'll take what I can get, hah.   I get spasms in the thoracic region which are totally debilitating, so I can't work and I had to stop studying. I try to keep up with my stretches and don't like to sit at home all day. Love mountain walking because you can take as many breaks as you need and still feel accomplished, haha.   The leading theory is the tumour is pressing on a nerve, or the hormones from the tumour have intensified pain from gallbladder. Sometimes the spasms last 4hrs, sometimes 28hrs+. ... View more

I'm really sorry to hear it has become terminal for you. Did you find anything in particular helpful for coping after diagnosis? I've been struggling to sleep because of the stress. At the moment I just try to distract myself with mindless TV shows. The tumour is coupled with chronic muscle spasms so it has been hard to keep busy. I'm really hoping it hasn't metastasised as well. Have no idea how they'll know. It is kind of encouraging to know the drugs have helped you. I've heard treatments are always getting better.   ... View more