Thank you very much Bessy, would you mind to let me know when you were diagnosed with ACC, which stage it was? After your surgery did you have recurrence? And would you like to share some of your experience how to recover from the surgery and radiation therapy? I will have a PET CT before my surgery, but this CT is only for neck and head part, I'm not sure if I should ask Dr Ben Dixon change to a full body scan?  ... View more

Hi Lampworks54, would you mind email me your surgeon because I live in Wheelers Hill, and Richmond is really far away. Also the private surgeon fee is quite expensive, I am not sure if I should go to public hospital. I just think if my life is counting down, I should save as much money as possible for my 2 boys, they're so young and I feel so sorry that I am sick and may not be able to see them growing up.  ... View more

Hi Chris,Lampworks54&Sylvia, I just found this on my report, stage I, pT1 pN0. I don't know why it looks like different with yours. I actually could be diagnosed much more earlier, before I went to Dr Ben Dixon, I was referred to see Dr Roy Taylor, he just gave me 1 mth or maybe 2 months antibiotics, after 3mth I went back, he advices its just a lymph node infection, then he referred me to see his son, ENT Dr Matthew Taylor to seek a second opinion. His son told me the same word, he said tumor would not cause any pain, as long as I felt the pain, its not a big matter. And he also told me Parodic cancer is very rare, for any lump under 1cm they will not do any action. Because reason 1 is this kind of cancer rare, reason 2 is under 1cm lump is too small, unable to do fine needle biopsy test. What a bull shit! So I backed home, waited another 2 or 3 months, but during the time I was consistently feel the pain. So I did a Google and asked my GP referred me to Dr Ben Dixon. Really hope on the coming surgery he could help me get the clean margin. I am a bit worried, because last Wednesday's surgery he didn't think it could be a cancer, so did not remove enough tissue. I just hope my tumor will not spread since my last surgery as it is very aggressive. Again, thank you all for the useful information and kindness support.  ... View more

Thank you everyone for replied my message. I am very appreciate for your kindness help and useful information.  ... View more

I don't know how long of my life is left. I am so scared and frustrated. My email is xy_chu@hotmail.com If anybody would like to share more please email me. Many thanks.  ... View more

Hi Lampworks and Silly,   I am 40 yrs old and I was diagnosed with ACC yesterday. Its a devastated time to me, as long as I think of my 2 lovely boys, 4&6, I am feeling so sad for them, because they will have no mum, when I think of my husband, sooner he will be alone to raise up our boys all by himself, I'm so worried.I cried and couldn't fall in sleep on last night. I had a lump on my parodic side, last Wednesday I had a surgery to remove this lump, but because the doctor didn't consider its a cancer, so the removed margin area still has tumour. So on this Wednesday I will have my 2nd surgery to remove more. On Tuesday I will have a PET scan, I guess they want to see if in my body have more tumour. I don't know what shall I do, I cannot pretend to be strong. Could you please recommend any good doctor in Melbourne? I am currently seeing Dr Ben Dixon in Epworth hospital. And could you please pull me to the ACC group on Facebook?  Many thanks.  ... View more

My email address is xy_chu@hotmail.com anyone would like to share with me your experience please contact me because I am devastated.  ... View more

Hi Sally, my name is June. I have been diagnosed ACC this morning. I am in Melbourne, wondering if I could talk to you to get some confidence to fight it.  ... View more