Hi Darcy - saw your post and then just remembered   Going ok I think, he had a PET scan and has a hookup next week to see if suitable for PRRT at Peter Mac in Melbourne. The emotional roller coaster continues as have just had 4 days of bad pain but has turned a corner this morning and is outside watering the garden.   Thank you so so for checking in - how are you going    ... View more

Thank you @Anonymous  for reaching out, much appreciated. We have reached some milestones et Christmas & new Year as hubby did not think he would make it.  Now he has pain management under control ( a bit of a challenge as he is very stoic).  See what 2021 has in store for us.   I have been doing a lot of self care & have found wonderful local services, meditation apps etc.  Also a facebook group called caring for husbands with cancer, I think I found reference to it on this site but not 100% sure. Anyways I joined to group and the women on there are amazing & what I am thinking and feeling is normal and expected. So all of the above is helping be stay calm while on this journey so I can help hubby more get through this.   Again thank you & hope all is going ok with you - kind regards     ... View more

Hi @Anonymous  - a lot of adjustments to be made in our lives, now and into the future when they have gone.   We have no choice but to live this journey and do the best we can xxx ... View more

thankyou @Kingfisher , this is exactly what I needed to read.   I have completed all the required tasks which I agree are necessary but make it all the more real as sometimes you think you are living a dream and you will wake up!! I am concerned about his mental health as he is stressing out about the most littlest of things eg ant rid getting damp - this is his way of being my husband I know as he has always done all the practical things around the house & is worried he is leaving me with unfinished tasks to manage. No matter how much reassuring I do he still worries.   We have an appointment with the oncologist tomorrow so I am going to request some calming medication as I said to him just a while ago if you don't calm down you will have a heart attack.   Have organised for this week 2 lots of organisation that can help with chores & a 'Gary sitter' so I can go out and have a massage, get chores done etc. Also a medi alert is coming Tuesday.   It is so overwhelming and exhausting - patience has to be in abundance.   I will as always continue to help him on this final journey as much as I can.   Appreciate your reply x ... View more

Sending best wishes  ... View more