Hi, I have joined the gist support group and the au/nz Gisters. I did get a little overwhelmed with all the posts.....I guess I need to keep telling myself that everybody is different and each of us respond to treatment in different ways.  My journey has now begun, and now I join the long list of gisters !! Good luck to is all. ... View more

Hi Bron, 18 years free is fantastic !  I am yet to see if treatment is recommended by oncologist yet.  After reading comments on the gist support group, I'm not looking forward to the side effects that come with the treatment.  Hope the experts can sort your meds out Bron to better suit your course of treatment. Keep in touch via this contact, and let us all know your outcome.  Take care ... View more

Hi there.....I have just had a GIST removed which was 7cm in length and attached to my bowel. Had a small bowel resection as well. I am seeing Oncologist to discuss of further treatment is needed. Even though the mitotic rate for the tumour was low he was concerned about the size which is moderate and could metastasize. ... View more