Hi all,
my dad has advanced prostate cancer. Two months ago, he essentially went from working, driving etc... to not being able to walk properly, slurred speech and breathless. He had already been on palliative care and the meds were working well in keeping his life ‘normal’.
In any case, we then went back to hospital and his medication was readjusted so that he would be out of pain, and we eliminated the drug that was making him sound drunk, confused and had him seeing things that weren’t there.
The palliative doctor was been reluctant to give him any blood at first, but about a 6 weeks ago the doctor finally gave him some blood and it really made him feel better,
The issue is that the benefits of the blood transfusions only last 2 weeks or so, and he has had more transfusions since. All of which improve his life a little.
As the cancer is advancing, the doctor is now telling us that he doesn’t want to give anymore blood as it is a precious resource and my father isn’t really benefiting from them.... but I can see the difference, he’s stronger and can even go for a walk.
To top it all off, my father suddenly lost his hearing ... This happened overnight. The palliative doc just said nothing we can do even if he didn’t look in dad’s ear. The hearing loss is making him go crazy... this is possibly worse than seeing him in pain, he can’t hear the TV and no help was offered, not even a suggestion. We placed my mum’s hearing aid in his ears and can hear with them. After much research on the Internet, Hearing Australia will come and give him a device that will help him hear .....
I’m just wondering if anyone else has come across this ‘it’s not worth it’ attitude from palliative care.... I mean my father is still here... he eats, drinks, reads... he is still with us... why make him suffer?
sorry for the long post, I suppose I’m perplexed at the attitude the palliative care are giving us.
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