Wow, very similar it just shows you really have to push for your health and listen to your intuition, I got to the point I thought I was just being paranoid, I had absolutely no symptoms either so that didnt help. No 49 is not old, I have just turned 50 and hope to have many for years yet, my youngest is 9 so need to stick around to support her through life, that's the hardest thing for me that perhaps I wont be here for her. On a brighter note tha antibots are working and my face has returned to normal now to figure out what to do with the tooth, it should have come out probably but obviously didn't think it a problem, then only took 2. I had physio after Rt and that helped with my achy jaw, you could ask about that, it might help. ... View more

I finished RT mid August 2020. I'm in NZ. No its not that simple, especially when you read the literature, but I just try to take one day at a time, its hard but have to keep up beat. Mine was in my submandibular gland, had PNI and no clear margins. It had been there over 5 years a s dismissed as a swollen gland, even had a biopsy in 2017 as I was worried no tests has been done, it came back clear so that put my mind at ease. Then it started to grown at the end of 2019 so i went to dr again and asked for further testing. Worst day of my life getting diagnosed especially when it had been there so long. But that seems  common with Acc, I read somewhere average time to diagnose is 8 year! There are some excellent FB pages with alot of members and their stories, some give hope others not so much. ... View more

Thats good news then. Not too bad, last check up and MRI were good. I do have an issue with a tooth on my radiated side which could be an problem, I look like i have a golf ball in my check at the mo.  ... View more

Hi Tarsh, I had, diagnosed May 2020, have you found the Life without a Ribbon FB page that's the Acc page in Australia, there is alot of info there. ... View more

Thank you so much for sharing this. It does alot to lift my spirits and have hope for the future. Its also good to know what other people are trying, I am on Vit C not high enough mg though, taking tumeric in a lemon, ginger drink little things like that as this is all very new to me. Its good to hear what options are out there also for if / when the time arises. Thank you!  I too intended to still be fighting in 21 years. ... View more

Thank you so much for taking the time to reply to me. Sorry you have had such a rough time, to date I have had no issue just a lump causing me psychological grief. I think that is half the reason it took so long to get diagnosis, no pain no symptoms and my GP just dismissed it as nothing to worry about. If there is one thing i have learnt from all of this it is trust your instinct. I hope things improve for you and you can get some relief some from both the physical and mental pain. I have read extensively in the week since I was diagnosed and it seems some ppl do live for a long time with this, I am in my 40s with a young family so I hope that is the case, it have to believe it is so.   Again  thanks for reaching out and take care.   Caro ... View more