August 2023
1 Kudo
Hi Mate, I’m a bit younger than you (54) but this is what I’m doing to control my mind and the cancer. It’s been almost three years since I had two occurrence of HVP16 throat and mouth cancer. I had a major op first, then 12 month later on the reoccurrence, I had chemo and radiation. I’ve got two under 10 age kids. I still have dry mouth effect daily. I run daily and most runs are threshold runs. I was an athlete before and just made high intensity runs a priority. When you exhaust your body, you don’t have time for negative thoughts. Your body starts to love you again. You drink more water and your liver starts to work again cleaning your body. You then start to eat heather. You start to brighten up and enjoy you life. go for a jog today, nice and slow. Hiking and get out and about is essential. good luck mate Andrew
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March 2021
I got late side effects 3 months after treatment (35 R & 3 C). This was picked up on a routine PET scan 3 months after treatment, that has thrown a spanner into my life and uncertainty for another PET scan in 6 weeks
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March 2021
I hear what you are say. we can put a man on the moon but can't get ride of cancer however not all cancers are food or man/women made. Some are DNA and other are viruses. There is stax's of literature out there for you to read.
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March 2021
1 Kudo
Hi all, Finished my treatment (35 Radiation and 3 Chemo) on the 27 November 2020. The past 3 months have been great. Gradually got 50-75% of my taste back, all my saliva back, exercising daily and no swallowing issues). Two weeks ago my neck started to swell and my jaw and tongue became slight stiff. I started gently manual drainage massage and the fluid subsided but the swelling and stiffness is still there. I had my 3 months PET scan this week and the disease has gone from my lymph nodes and tonsils however there is some activity in my jaw and tongue. All the literature indicates late side effects. Has anyone else experience these late side effects? Follow up with ENT next week and another PET scan in 6 weeks. Is this
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November 2020
Week 6 & 7 Completed (Bigger, Better and Stronger) Treatment completed Week 6 was a normal radiation week only. loss of all taste, drier mouth and loss of appetite. Skin along the neck has become itchy and flaky Week 7 was Chemo and radiation. Felt nausea and fatigues. No appetite. WFM and slept most days. Slight recovery on weekend. Feeling: Sick, nausea and fatigue. Felt down Exercise: Running 5km x 4 times a week. Eating: Eating has become an issue, can’t taste anything and don’t feel like eating. Brekky – Oats and milk (honey) Morning tea – Oats and milk (honey) Lunch – fried rice Dinner - packed rice or noddles Mouth Rinse: Salt/Bicarb water, Diffelan, pink lady and 3-4 litres a day water. Cream: Sorbolene lotion.
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November 2020
Week 5 Completed – Easier week Plan: Work until early afternoon and then have the treatment at 3pm. Treatment: Radiation - Mon - Fri Feeling: Week 5 was a normal radiation week only. loss of all total taste, drier mouth and loss of appetite. Exercise: Running 5km x 4 times a week. Eating: Eating has become an issue, can’t taste anything and don’t feel like eating. Brekky – Oats and milk (honey) Morning tea – Oats and milk (honey) Lunch – fried rice Dinner - packed rice or noddles Sweets: Soothers (Blueberry, Butter Menthol and Eucalyptus Menthol). Mouth Rinse: Salt/Bicarb water, Diffelan, Oral 7 and 3-4 litres a day water. Cream: Aloe Vera lotion.
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November 2020
1 Kudo
Week 4 Completed - Tough week Plan: Work until early afternoon and then have the treatment at 3pm. Treatment: Chemo - Mon, Radiation - Mon - Fri Feeling: Week 4 was a Chemo week so I felt bad. Nausea, fatigue, loss of all total taste, drier mouth and loss of appetite. Exercise: Running 5km x 4 times a week. Eating: Eating has become an issue, can’t taste anything and don’t feel like eating. • Brekky – Oats and milk (honey) • Morning tea – 2 min noodles • Lunch – fried rice • Dinner - packed rice or noddles Sweets: Soothers (Blueberry, Butter Menthol and Eucalyptus Menthol). Mouth Rinse: Vingar (ulcers feel better), Salt/Bicarb water, Diffelan, Oral 7 and 3-4 litres a day water. Cream: Aloe Vera lotion.
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November 2020
Treatment Week 3 Completed Plan: Work until early afternoon and then have the treatment at 3pm. Treatment: Radiation - Mon - Fri Feeling: Week 3 was a none Chemo week so I felt good. I’ve started to get small ulcers in my mouth cavity. Taking soluble Panadol every 6 hours. Exercise: Running 5 km x 4 times a week Eating: Trying to eat normal and convince my taste buds its delicious. Spicy rice dishes, strawberry jam on toast, yoghurt, custard and rice pudding. Sweets: Lifesavers, Soothers (Butter Menthol and Eucalyptus Menthol). Mouth Rinse: Salt water, Oral 7 and 3-4 litres a day water. Cream: Aloe Vera lotion
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November 2020
Treatment Week 3 Completed Plan: Work until early afternoon and then have the treatment at 3pm. Treatment: Radiation - Mon - Fri Feeling: Week 3 was a none Chemo week so I felt good. I’ve started to get small ulcers in my mouth cavity. Taking soluble Panadol every 6 hours. Exercise: Running 5 km x 4 times a week Eating: Trying to eat normal and convince my taste buds its delicious. Spicy rice dishes, strawberry jam on toast, yoghurt, custard and rice pudding. Sweets: Lifesavers, Soothers (Butter Menthol and Eucalyptus Menthol). Mouth Rinse: Salt/BiCarb water, Oral 7 and 3-4 litres a day water. Cream: Aloe Vera lotion
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