Hi clrdwin, Oh this must be so frustrating for you. I know what it is like to wonder if the medical side of things are up to speed and if you make waves or question decisions, will it be your father who cops the fallout. You are your father's spokesperson and guardian. It is up to you to ask the questions, including the difficult ones. Don't worry about offending the medicos by asking if they might be wrong. Do not ask in an accusatory manner - just relate the salient points as you have done in your posting here. Write some brief points down to help keep you focussed. Rank them in order of importance or concern so that if there is limited time, then the big questions are asked first. If there is not enough time for a discussion, ask when an appointment for this can be arranged. Ask for the social worker or a friend to attend with you so that you do not feel as if you are fobbed off. Continue to look after yourself too. Either use this forum to vent or speak to a counsellor. Wishing you well in your journey. ... View more