Oh dear Carmel that sounds awful. Especially since you don’t like needles. I had to self inject Clexane  a few years back but it didn’t bother me. I was a nurse for 45 years so I was used to needles. What  a shame about the trials. Did you have adeno carcinoma ? and an operation ? My hair fell out but I haven’t had anymore chemotherapy or radiation.  Take care.  penny  ... View more

Hi Carmel Thank you for replying. Coffs Harbour is two and a half  hours north of me so too far for me to drive. I was diagnosed in December  2016 with upper third SCC in situ. I had radiotherapy and chemotherapy as it was inoperable. I spent 7 weeks in hospital with nasogastric tube feeds. Pretty ghastly. I was okay for three years apart from a stricture caused by the radiation. A year ago it came back in the lower third. Have been having ablations and dilatations every two months in Sydney ever since. What a trial. I hope you are okay at present. Cheers Penny ... View more

I live in NSW, Mid north coast so not able to attend a get together in Victoria. I have squamous cell carcinoma of the oesophagus and would like someone to talk to. ... View more