June 2021
Wow, you have had quite the journey so far. What helped you get through the hard days? For me (so far, it's really only early days / weeks of treatment), it's a good nap, a heat pack (more for mental comfort), cuppa tea, an episode of The Office, crumpets with lemon curd or peanut butter or raspberry jam, nice slow walk around the block.... Not sure of the size of my tumours - sorry.
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May 2021
Thanks sch, love those tips. And I have certainly been trying to do as much walking as possible. Possibly the only exercise I have been able to do. I have been diagnosed with liver cancer (bile duct) and my 3 week cycle is: Day1: Gemcitabine and Cisplatin (chemo) together with Pembrolizumab (immuno) Day 8: Gemcitabine and Cisplatin only (no immuno). a week off, then start again. I haven’t had surgery - just straight into chemo / immuno. I think I am finding my day 4 is my worst - tired, stiff neck, nausea. Really nothing the anti nausea, panadol and a good nap can’t fix. I am hoping I can work some of the time - for mental stimulation, a different focus and to save not using as much leave. Hope you’re doing ok!
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May 2021
4 Kudos
I have just started treatment (my cycle 1, day 1 of treatment was on Tuesday) and I am really interested to hear how people are finding their groove? Any new morning / afternoon / evening routines, complimentary therapies that are working for you, exercise that is working for you or food? For me, the first few days were a roller coaster - the day after treatment I felt amazing (assuming it was the steroids that were given to help with boosting appetite and managing nausea), next day I was tired (I may have done too much the day before), following day I paced myself (much better and had an afternoon nap)... now onto my 4th day. Pre-treatment (and at diagnosis) I would consider myself a normal 40 year old woman (married with no kids) slept well, healthy, fit, active, social and working, I don't smoke, drink and didn't mind the occasional Big Mac. I am taking time off work for my first cycle (3 weeks) to find my groove with the hope I can go part time for a short while. Thanks in advance for your tips.
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