I was diagnosed with stage 2 Squamous Cell Carcinoma on the tonsil in January of this year. Have already gone through the 35 radiation treatments and had weekly doses of chemo (cisplatin to start then put on a different one I can’t remember due to cisplatin causing permanent tinnitus). Anyway, that all finished mid April and my current frustration is I wake up every day feeling nauseated. Some mornings to the point of vomiting. Even though I am still taking Zofran. I can’t seem to find any answers as to how long this will last. Google only pulls answers talking about side effects of those currently in treatment and Oncology Dr says it should go away “soon”; but someone I work with who had thyroid cancer said she still gets nauseated and it’s been “a long time” for her. I know everyone’s experience will be different, but for me the nausea and vomiting were the worst part of treatment because I’ve always hated and somewhat feared throwing up. I feel lucky I didn’t experience the pain and mouth sores others have reported. Radiation Dr told me it could be 6 months before I feel normal again. I thought that meant my energy levels and strength, I suppose he could have meant the nausea, too.
... View more
Hopefully this doesn’t come too late to help you or can help someone else. My radiation Dr suggested I use a product called Helios as a mouth rinse. I got it the day he mentioned it and used it regularly throughout treatment. Kept my mouth from becoming overly sore and promoted healing of the cells that were being damaged by the radiation. I was also able to eat solid foods throughout my treatment I’m sure because of the Helios. He also suggested using Manuka honey to clear the heavy phlegm from the back of my throat. That stuff was awesome. Would grip the phlegm and carry it down my throat without any effort. Hope everything goes well for you.
... View more
Hi, I know this is a couple months off, but wanted to reply in case someone else sees this looking for answers. I had squamous cell carcinoma of the tonsil, went through 35 doses of radiation and 7 weekly chemo treatments. At my last follow up weigh in (mid June) I was at 169 lbs. When I started treatments I was close to 220. My Drs weren’t overly concerned about my weight loss, and encouraged me to keep eating what I could. The nurses responsible for my radiation treatment were really supportive about the weight loss and even had a positive attitude about having to rescan me when I dropped too much weight (thankfully I didn’t have any tattoos because I happen to have a freckle in the perfect spot). I’m sorry your team seemed so negative about it. I feel that they shouldn’t have been so harsh. I loved working with both my radiation and chemo people. They were all so positive and supportive which I feel made all the difference in my treatment course.
... View more
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.