Hi there, This is the first time I have looked for support. It’s hard to do. my son was diagnosed with ph+ ALL in 2005 at the age of ten. He was diagnosed the week of his birthday. He had a bone marrow transplant at first remission. He has since had 6 relapses. His latest treatment has been Car-t cell. (Dec. 2020 and again in Aug. this year) It didn’t work for long. We have been told that his relapse is imminent. He is 25years old. He has physical problems because of the extensive chemo, radiation and drugs over the years- so he doesn’t work and hasn’t managed uni. The longest break he has had between relapses is 4 years. I am single and have 2 other adult children- 24 and 19. I work full time and have developed social anxiety and pretty much stay in the house unless I’m at work. This is probably the most emotionally unstable I have ever been and would really like to chat to someone who might have some of the same feelings/ experiences. Thank you for reading. Im sorry you are here too K
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.