Hi Dragonmaid2264, I hope that you and your daughter are staying strong, wherever you are now in this journey. I came across your post while looking for pancreatic cancer support groups - I am in my 20's, and my mom, who I am very close to, was diagnosed with stage 4 pancreatic cancer on Thanksgiving of 2018. She was given 18 months to live...but she's still fighting today and doing really well. There's a few things I've learned in the midst of the chaos. First, that doctors aren't always right. They do their best to be as honest and realistic as possible with patients and their family, but they can't see the future. My mom defied the odds, and continues to do so, despite what the doctors initially told her. My mom also incorporated a variety of off-label drugs into her treatment, and it's really helped. She released an article about those drugs and other methods that have helped her - if you want to check it out, it's posted here. Second, no matter how hard things get, you have to take a deep breath and keep riding the roller coaster. There are periods of time, as you know, where things are particularly bad. Extended hospital visits, infections, late night trips to the ER, bad bouts of chemo...I tend to go numb when my mom is really struggling. I've even found that I base my own mood on how my mom is feeling. After the bad, though, there's always a period of good where things are calm. I hope that you and your daughter remember to take that time to relax and enjoy the little things with your husband during that period. Third, please remember to take care of yourself, too. I have a little sister and an incredibly anxious dad who I've felt so protective of since my mom's diagnosis. There are times I am so afraid to let my mask of "everything will be fine" slip, and show what I'm really feeling - fear. But sometimes, you really do have to let that mask slip in order to get the help you need. Sending healing, positive light and vibes to you, your daughter, and your husband. -A friend
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