Thanks Eric. I think I speak for a lot of us when we note a (potential) issue with our bodies that it is far too easy to write it off as a passing ailment which will likely correct itself. I am so thankful that I realised that this was out of the ordinary and that it warranted further investigation. Having dealt with it for the past year then I have obviously been asking myself questions such as “was it there when I had the first biopsy?” and “would scans have showed a tumour way back then?”. Of course these questions all fall into the ‘what if’ categories which have caused me the most anguish. I don’t think things would have changed any but naturally it’s still a concern. Moving on, I haven’t updated in a few weeks so I am now 2/3 done with radiation. The end of week 2 saw the start of my side effects which became full blown in week 3. The worst being an ulcer on my tongue (opposite side to treatment) which measured some 40mm x 10mm and caused me so much pain and discomfort - any acids within foods hurt incredibly and everything I did affected it. I was prescribed fentanyl patches along with the oxycodone and not even that provided relief. Over the course of 10 days, despite my best efforts to eat or drink meal replacement shakes I lost about 5 kg. I seem to be past that now in that I can eat again however I definitely note the change in taste and so on. I haven’t got the dry mouth issue, in fact I’m dribbling more than ever in my sleep and the saliva is quite thick and difficult to expel. I’ve returned to work (albeit 3 days per spread across the 5 days) and it’s been good to focus on something other than all this. Fatigue hasn’t been too much of an issue and I’m feeling well again. Not long to go now and I can focus on getting on with things and try to ignore the fact that this isn’t really over but is at least the end of treatment for what I hope is the hardest phase. Thanks to all who have followed my story and who have taken the time to respond and to offer me encouragement and so forth. I’ll be back in a couple of weeks to celebrate the end of my treatment and hopefully it’s all uphill from there! Kind regards, S.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.