Hello Jimmy77, good to hear back from you. I find coping post surgery and now chemo a roller coaster. I have terrible “blue” days when I question why I am putting myself through this and other days when I feel a tad better. My first week of chemo seems to be the worst when I am beyond exhausted and struggle with this horrid side effect called “chemo brain”. There is a terrific podcast on this website about this issue. My brain doesn’t work and I am so exhausted that walking to the bathroom is a marathon and showers impossible. My exercise physiologist wants me to walk 45 minutes every day, but in week one it looks more like crawling on all fours and takes a huge toll. By week two I am feeling more “normal” …less tired and my brain seems to work better, and I can walk on two legs ! Coping is a day by day thing and sometimes hour by hour…it’s hard and you need to dig deep for strength and resilience. I am blessed not to be struggling with horrid side effects like nausea, vomiting and diarrhoea but have had a few scary moments over the past 4 cycles. One morning I woke with black spots on my tongue and thought I had the plague ! Turned out to be some sort of pigment thing and resolved in a few days. After cycle 2 I developed a rash ….The Emergency Department were really unhelpful but decided because I had no trouble breathing or swallowing I was not having an allergic reaction to chemo. Turned out to be either a reaction to the cleansing lotion used to access my port and/or a stress reaction. I now have two DVT’s in my left leg resolving with blood thinners. I am learning to deal with whatever happens, get help, ask questions and when my brain doesn’t work trust my advocates to speak for me. It’s a learning thing and you will be okay. The Cancer Council podcasts are terrific and will teach you heaps. Stay strong and know that there is a whole community of people experiencing similar journeys, you are not alone. My thoughts are with you 🙏
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