thank you elizabeth, I am on pancreatic enzymes.  I think I am doing most of what that article says.  I'm still needing the metaclopramide to stop the nausea but have been advised to try and change to domperidon instead which has less side effects,  the nausea is my big porblem because it stops me eating.  I appreciate your time and energy in responding to my questions, regards Kristel ... View more

hi Elizabeth67, wow you are an inspiration.  Can I just ask you about the nausea after your whipple procedure? Did you have gastroperiasis ( delayed emptying) did you have trouble eating? how much weight did you lose after whipple.  How long did the eating problems go on for and how did you deal with it?? some people are saying 12 months or more.... I just cannot imagine coping with this.  Food is a chore.  I eat the same every day, simple basic and quick to slap together.  too sick to cook, I eat like a robot. Kristel ... View more

hi chris, my name is Kristel.  I had a whipple in march also for a bile duct cancer and while I do not have to have chemo at this point, I am struggling with the effects of whipple. I have gastroperiasis, delayed gastric emptying which is causing me no end of nausea.  I feel for you re chemo I have had the thought many times wow I am not well enough to have chemo right now and am very lucky not to need it at this point. I cannot believe how much my life has changed and I cannot believe the anxiety stress that has resulted.  Today I rang PANCARE.   found them very knowledgable, actually the most knowledgeable person I have spoken to about whipple.  I am really quite stressed you get given the operation but then left to fend for yourself regards living with the side effects.  I'm not sure that my comments have helped you in anyway.  Just know that I am hearing you regards your fear of chemo and the side effects.  I wish I could write and tell you it all gets better but I am like you not at the stage yet either,  thinking of you Kristel ... View more

hi my name is Kristel, I am also new at this.  Just had whipple procedure and while I am currently told I do not need to have chemo, I am petrified that maybe I should have it anyway, but honestly I am too sick right now.  I am responding to you because I can really relate to what you said about wanting to live before cancer and wanting to die after whipple.  I have gastroperiasis and the whole eating thing is a nightmare.  I am not sure I should be the one writing to anyone because I feel so negative and depressed.  Like you I am inspired by the people who are positive and holding onto hope.  I wish I had more of that.  just wanted you to know I could relate to what you said, thank you ... View more

thanks for your reply, did you have gastroperiasis?? and if so how long did it last for??  This is one of the main causes of the nausea.  I hate food, don't want to eat.  having trouble even preparing food.  finding that I have to keep it simple like a piece of toast or something really simple to prepare.  I'm down to 53 kilos so am really worried about the food and the weight loss.   ... View more