Thank you for noticing me. I was beginning to think that nobody even saw my post, much less wanted to respond. I feel sad knowing that other people are going through the same thing as me. I get a lot of information about different treatments etc. from reading all the comments. The chemo and radiation therapies have my cancer in check temporarily, as my cancer is the type that Always comes back, so I'm just waiting for the next round of bad news any day. I'm done with chemo and radiation for now but I still have immunotherapy every 21 days, and I think that is causing neuropathy because of the severe pain in my legs and shoulders. My team or doctors can't seem to figure out why I'm having these new pains. They're just guessing that it's neuropathy but the medication for neuropathy is not helping. Are there others on this site that have these pains? Hopefully people will see this post and comment.
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I was diagnosed with stage 4 lung cancer in December 2021 that spread to my liver and back to my lung. I've completed chemotherapy 6 sessions (18 days total) now every 21 days I do immunotherapy. I also completed radiation on a large tumor on my lung, 5 days a week for 4 weeks. My oncologist has me on monitoring status, having a PET Scan every 2 months to make sure that the immunotherapy is working correctly, keeping the tumors from growing. My radiation doctor wanted me to do a prophylactic treatment on my brain to prevent cancer from spreading to the brain. The possible side effects were too much so I denied that treatment after I was told that it was totally up to me. Some of the possible side effects are loss of mental capabilities, loss of temporary and long term memories, General brain functions. Kinda like early onset alzheimers disease. It's only 2-5% of patients who have these side effects. If I lose my mind, I have nothing left. That's how I feel. Now I wonder if I made the right decision 🤔 . My doctor too gave me a time-line to live was 6 months w/o treatments and 12-15 months with treatments. She told me this in December, so according to that time-line I have 5-8 months to live. I am 51 years old now and have my first grandchild coming in 8 months that I really want to meet. I'm not afraid to die, but I am afraid of leaving my family 💔 I really think that I can outlast her time-line since all the treatments have gone so positive. Fortunately for me, I didn't have any side effects from chemo or radiation. However I have severe pain in my legs and shoulders, possible side effects from the immunotherapy. The pain meds are keeping the pains somewhat at bay, so I'll just continue to take it day to day. They say time flies when you are having fun, well I assure you I am not having fun and time is flying by so fast that I can't believe it is happening. It's as though I am living in a nightmare that I can't wake up from. Sorry so long. This is my first post about my cancer and what it's like for me. Thank you for reading this.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.