Last blog entry took me up to where I finished my last clinical trial in December 2012. So, since then.......
Over the Christmas period I had, for the first time, a lot of issues with pain management. Prior to that all my symptoms for the past 4 years related to treatment, rather than the cancer itself. So we spent most of January getting the pain under control, finally settling on 20mg OxyContin morning and night. I have no idea whether this is a small or a large dose - but it worked.
Late January I commenced a new chemo routine - carbo and alimta. To date I have had 5 rounds, with occassional delays because of poor blood counts. The 5th round was meant to be Alimta only, but a multitude of errors last Friday meant I got carbo as well.
I am tolerating this chemo extremely well. No major side effects, with fatigue being the only real issue but I am on top of that now. No weight gain or loss, good energy, no nausea etc, just some annoying constipation, probably from the OxyContin. And I have reduced the day time dose of OxyContin to 10mg, and intend to reduce the night dose any day now.
I have had 2 scans during the period - the first showed stable, the second showed minor reduction. Dr West, from the Grace website, indicated that it was very unusual to get any shrinkage at all with a 5th line treatment.
And during the time I have also done 4 holidays - 9 days camping over Christmas, 5 days in wonderful Byron Bay, 6 days camping at the National Folk Festival in Canberra, and 5 days to central Australia, including one night on the Ghan. Truly wonderful times.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.