August 2013
I am treated at Peter Mac as a private patient. I understand that the difference is that this way they get reimbursed by my health insurer. If I went as a public patient they would get no reimbursement. And to Peter Mac every $ cou TS, as it should.
Gail
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August 2013
1 Kudo
I have always had scans every 6 weeks, for the last 4 years. There is something reassuring about such frequent scans - at least I know it's not sneaking up on me. The downside is the frequent scaniety.
Because of knee and feet pain, this 6 weeks also included a bone scan. So last week I got the result of the bone scan and normal CT scan.
CT scan continued to show stable, so I continued with my 10th dose of alimita.
The bone scan indicated stress fractures in both feet, and either stress fractures or arthritis in both knees. So my days of power walking 35ks a week are currently on hold but I'm not complaining (well, I actually am a bit), but it's not cancer!
Just returned from 5 days in Townsville (where unfortunately I could barely walk). In September husband and I are going to Adelaide for 3 days to check out the wineries.
October is a busy month. Have 7 nights in Bali with my sister, then 4 days on the Gold Coast with my daughter and her eldest. Plus the Heathcote Food and Wine Festival. Plus my 30th wedding anniversary (totally unbelievable!) and my birthday.
Living with fear, but trying not to live in fear.
Gail
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July 2013
Great to read your blog.
I think it's a hard lesson for all of us, that the world continues on regardless. But it's great that you have been so successful in redoing the world. Fingers crossed for the job.
Gail
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I don't know anything at all about your cancer but just wanted to write and say I have read your blog, and hope that someone responds.
Gail
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Have just come back from 8 days travelling to and staying at Port Stephens. A really wonderful place. We fished, ate, drank, saw whales, and walked. A lovely place.
Back to Melbourne for 6 week scan and 8th round of Alimta. Still stable. So have now booked a river cruise in France for July next year. Fingers crossed.....
Gail
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June 2013
Hi J
I also have stage 4 lung cancer - the TMN system is just a way of describing the tumour and spread.
I haven't had radiation but I would guess they are doing it to try and reduce tumour size and thus relieve symptoms.
I was diagnosed 4.5 years ago at the age of 54. And I'm still here. There are lots of treatments arou d these days, and even though the cancer is terminal, life expectancy can be increased considerably. Hoping you and your dad hang in there!
Gail
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June 2013
Please continue with your story. Writing can be very cathartic, and others can also learn from you
Gail
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June 2013
One of my long bucket lists items was a river cruise in Europe. We have previously done river cruises in Russia, Cambodia/Vietnam, and Burma. We are not keen on big cruise liners, but river cruises, with < 150 people are great.
We arrived in Nuremberg, via Minich, on 1 June ready to join our cruise the next day. When I contacted the company to find out where boat was docked I was told it wasn't sailing - the floods in Europe had grounded(lol) all river cruises, as they couldn't get u der bridges, and there docking places were islands. So the dream river cruise turned into a coach trip! Definitely not what we planned. But in fairness the company we were travelling with did a great job of substituting accommodation and excursions. 7 days later we arrived in Budapest, where we had arranged for 4 family members from Ireland to meet us. Had a ball. Then on to Prague for 3 nights - my favourite place ever, and home to Australia via Dubai for 2 nights. Arrived home Tuesday morning at 5.30, and 2 days later I am at Peter Mac having chemo.
Current chemo, alimta, is the easiest to take of the 5 lines of treatment so far. No side effects, and schedule is flexible enough to accommodate holidays. I have 4 more booked this year, all within Australia, and am researching another river cruise for next June. Advised dr this morning that he needs to keep me going at least that long!
Gail
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June 2013
It is just such a shock when you are first diagnosed but hang in there. I was diagnosed 4.5 years ago with stage 4 lung cancer and I'm still hrere, and thoroughly enjoying life.
Please, tell us more about your diagnosis and treatment plan. Lean on your support group, but also research, learn and advocate for yourself. There are lots on good websites, in particular Grace, where you can have access to oncologists with expertise specifically in lung cancer.
One day at a time
Gail
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Unfortunately I have no useful information whatsoever. But just wanted to respond so that you know that there are people out here reading your blog, and caring
And for no good reason whatsoever I would try chocolate or ice cream - just because they are nice and worth a try
Gail
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