Its been a month or so since I last updated, Ben has had his follow up appointment with the oncologist & is now medication free.
No sleeping tablets or dex.
The doc advised no growth, which is awesome news but Ben has gone the complete opposite.
About a week before the doctor appointment he started to sleep more, and be a bit dizzy. We mentioned this to the oncologist but he didn't seem to worry- just mentioned to me to watch for him acting strange, and drunk like. If that is to occur, he would have to have a shunt put in his brain.
So we get to the third week of December,and I am really starting to notice this bloody brain tumor.
Christmas was lovely and quiet but he slept most of the day. Which is now a common thing in our house. He is awake for about 2 hours of the day & night only.
He so wonderfully, came along to carols the night before christmas eve, I could tell it was so tiring- but he does it with no complaints.
Once the public holidays are over, we will head to the GP- get a blood work up done. Hopefully its just a lack of iron or something.
If nothing to out of the ordinary we will have to go back to the oncologist.
I suspect he will suggest Ben goes back on the dex. And I know Ben will refuse.
Maybe its time to start consulting Charlie Teo???
My birthday is the beginning of Feb, our second daughter's first birthday is late Feb and his 1st year anniversary of this shit of a thing is the 1st of March. I hope, and I pray that this will be a happy time for us.
We have had a lovely time, such awesome memories, I still pray for a miracle.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.