Time is all we have. I live in a hospice bubble. If my husband smiles its like a major event. If he eats half his meal I'm happy. It's amazing how the little things become moments of joy when joy is so far from our every day lives.
I'm learning new parts of me that I never thought existed. My ability to cope with every change although this requires adjustment which usually involves lots of tears and sleepless nights. At the moment I wake ul at around 2am every morning with a panic attack. The anxiety is palpable. But, I find my strength again and I get on with the day at the hospice, feeding, changing him, bathing him, holding his hand and talking with him, about nothing.
He will be gone soon and all this will seem like a nightmare. But, I will be ok, eventually.........
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.