Our journey with GBM has taken over every aspect of our lives but I guess no matter which brand of terminal illness you are unfortunate enough to have it will do the same. My husbands tumour has progressed and we have been told there is not really much more to be done. Chemo is offered, low dose temodal for 20 days on and 8 off but we are told that 10 to 20% will have a benefit of 1 to 2 months at best and that needs to be balanced against how it makes you feel. Tough decision and one he has not yet made. He has had 3 nasty seizures and continues to have focal seizures as before, a little more forgetful and unable to cope with concentrating for more than a few mins with anything complex. His balance is a bit worse but sit him in his chair and he looks so normal, how is that possible? He is still unaccepting of this reality and I quite look forward to him coming to terms with it, I only hope he does while he is still able to communicate with me on a meaningful level. Hope you are going ok. Cheers Terese.
Super Contributor
My thoughts are with you and your husband at this most difficult time .
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Hi Terese, I knew things were mot good from facebook but hadnt seen you on cancer connections. You know a doctor told me a cancer patient of his did not come to terms with it till 10 mins before he left. Who knows what the right and wrong way of thinking when you have a terminal illness, like I have mentioned before Kep still thinks he is going to be ok even when he has been told. I hope and pray your husband finds the strength to share with you but I guess its a way of coping, dont know really. You are in my thoughts Sandra (rarsie)
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Frequent Contributor
Hi Terese, Sorry to hear that your husband is not doing so well. My partner said to me that there was only one way of thinking and that was we were going to beat it or live with it for a long time. So I guess it's the way they fight and deal with this beast. It seems to them there is no grey area where they come to terms with what's happening and not losing hope. For now, I'm happy that we are fighting even though I sometimes wonder how and why I have to know this beast and wish it is over soon. Well, I hope this journey is not too hard on you. Take care.
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My thoughts are with you and your family as you travel this awful road
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Occasional Visitor
My thoughts and prayers are with you, your husband and your family during this difficult time hun
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