I hate the week leading up to an MRI. Every little thing takes on new meaning. A stumble, "is that a new tumour"?, a headache, "has it grown back'? My husband is living on Zanex and I'm on a razor's edge with fear. How long do we have to live like this? Why cant a cure be found?? I read the stories of GBM spouses and I hate the pain and suffering they have to endure. Watching their loved ones slip away and, I know it will be me some time in the near future who will sit helpless as my husband is taken from this world years before he should be.
Dear Jobeth I am so sorry if my post upset you. It is an impossible situation we find ourselves in. Hope they will live longer then as they start to show the disabilities of the disease we begin to wish for their journey to end. Peace for them and ourselves. I am a bag of negativity and misery. I hope your journey through this is kinder than ours. Hugs Terese.
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Hi Terese, It hurts to hear of others pain. How could you not be negative and miserable, you're going through the hardest thing you'll ever experience in your life. I understand. Im thinking of you and I'm wishing it ends soon, for both of you. Much love, Jo xx
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