Hey there! Just sharing...... My darling husband was diagnosed with Epithelioid Haemangeoendothelioma in his peritoneum in Sept 08. In December 08 he had a peritonectomy with 'hot chemo' at St George hospital in Sydney. As we live on the NSW QLD border, it was a mission to get him down there, have the op and get him back here. Follow up visits have been difficult with two young (2 and 4y.o) children. Right now though, we have been told that he has tumour still on his liver- as to what they can do for it- no one knows.... Did I mention that he is the third reported case in the world? While there are about 240 people in Australia with EHE, Bob's is the only one in his peritoneum. He struggles daily with pain, and as a 37 year old musician, the fact that he can no longer work, or drive a car, is almost as bad as the disease itself. BUT! With no prognosis- we feel that we are the lucky ones..... It doesn't make it any easier when he has been in bed for a week and the kids just want dad and dinner is burning on the stove and and and..... I guess I am just putting it out there to the world of cyber land that you are not alone.....there are others who look to the skies and wonder "why?". and then get on with the job. Cancer is a crazy trip....and then some. But thank god for family, friends, fine wine and fabulous chocolate! Thanks for listening! PA
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Hi purpleangels welcome to the site and blog land. 🙂 Having had to travel for treatment also i can empathise with you. It is a tough time and i hope you have a lot of help on board. I found it helped to have someone to pass on the news of the day / week and then of course those wonderful friends who drove me to treatments which was no mean feat as it meant a 400 km round trip for me and 3 days in between. So often they would drive me up and then come back 3 days later to pick me up. Of course all of this was under the cloak of last minuteness ... think i may have made a new word there. lol Hope you, your kids and your hubby are all travelling as well as you can. Julie
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